Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Building Capacity for Patient Engagement in Real-World Evidence Development

04/15/2020

Building Capacity for Patient Engagement in Real-World Evidence Development In January 2020, the National Health Council, in partnership with the Duke-Margolis Center for Health Policy,

CMSS-NHC Primer: Enhancing Patient Partnerships

04/15/2020

CMSS-NHC Primer: Enhancing Patient Partnerships How Patient Organizations and Medical Societies Can Enhance Patient Engagement in Clinical Registries and Research Read more

Avoiding Discrimination while Treating COVID-19

04/13/2020

By Maddie Mason, Senior Associate, Policy One of the issues of great concern, as we reach a point in the COVID-19 emergency where some difficult

Patient Groups: Building Community During the COVID-19 Crisis

04/10/2020

By Susan Gaffney, Vice President, Membership, Development and Operations This is the third in a series of blog posts focusing on how the current climate

Patient Groups: Fundraising During the COVID-19 Crisis

04/10/2020

By Susan Gaffney, Vice President, Membership, Development and Operations This is the second in a series of blog post focusing on how the current climate

Patient Groups: Day-to-Day Operations During the COVID-19 Crisis

04/10/2020

By Susan Gaffney, Vice President, Membership, Development and Operations It’s apparent we are all going to spend days, weeks, and possibly even months isolating ourselves

Coronavirus Preparedness for People with Chronic Diseases: What are the Mental Health Implications?

04/09/2020

Coronavirus Preparedness for People with Chronic Diseases: What are the Mental Health Implications? Event Time: 11:00 a.m. ET – 12:00 p.m. ET Event Location: Webex

Ending Surprise Medical Billing

04/09/2020

Dear Majority Leader McConnell, Minority Leader Schumer, Speaker Pelosi, and Minority Leader McCarthy: The 30 undersigned organizations, representing millions of patients and consumers across the

Expansion of Paid Family Leave Act

04/09/2020

Dear Speaker Pelosi and Leaders McConnell, Schumer, and McCarthy, The 157 undersigned organizations, representing millions of patients and consumers from across America, urge Congress to