Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Real-World Data and Real-World Evidence 101


This webinar will introduce essential terminology related to real-world data (RWD) and real-world evidence (RWE). We will discuss how RWE complements evidence from traditional randomized clinical trials and highlight case examples.

It’s Flu Season – #GetVaccinated


It’s Flu Season – #GetVaccinated By Theo Smith, Associate, Marketing & Communications   The 2020-21 flu season has officially begun. It is important for everyone, especially people with chronic diseases

Flu Season Resources


Experts agree. It is critical to get a flu shot, especially during the COVID-19 pandemic. It can help keep you and those around you healthier this winter.

Member Spotlight: National Association for Hearing and Speech Action


By Theo Smith, Associate, Marketing & Communications   For millions of Americans, the simple act of communicating can be difficult. Significant numbers of people from the very young

PCORI Real World Evidence (RWE) Advisory Board


PCORI Real World Evidence (RWE) Advisory Board Members Vanessa Boulanger, MSc, Director of Research Programs, National Organization for Rare Disorders Susan dosReis, PhD, Professor and

Register Now! NHC Virtual Science of Patient Engagement Symposium:  Including More Voices: Improving Diversity and Representativeness


by Silke Schoch, Manager, Research & Programs  The NHC Science of Patient Engagement Symposium is coming up in less than two weeks! Our theme this year is focused on diversity and representativeness

2020 Washington Representatives Retreat


2020 Washington Representatives Retreat Event Time: 1:30 – 4:30 p.m. ET Event Location: Virtual Agenda (download) The National Health Council (NHC) hosted a successful virtual 2020 Washington Representatives Retreat. While we

Member Spotlight: The LAM Foundation


By Theo Smith, Associate, Marketing & Communications   Lymphangioleiomyomatosis, known as LAM for short, is a rare lung disease that is characterized by an abnormal growth of smooth

National Health Council Announces CEO Search Firm


WASHINGTON, DC, Sept. 11, 2020 – The National Health Council (NHC) is launching a search for a Chief Executive Officer to replace Marc Boutin, JD,