Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Case Examples of Patient-Centered Real-World Evidence

02/22/2021

Have you been hearing about Real World Data (RWD) and Real-World Evidence (RWE) and wondering what they are or how they might impact patients and care?

Patient Contracting Tools

02/18/2021

Patient Contracting Tools Template Agreement between a Patient or Patient Advocacy Organization and a Pharmaceutical Company User Guide Annotated Guide Principles for Contracting between Patients/Patient

Data Capture in Clinical Settings

02/18/2021

Data Capture in Clinical Settings Event Time: 12:00 – 12:45 p.m. ET Event Location: Virtual, Zoom Moderator: Gillian Sanders Schmidler, PhD, Deputy Director, Duke-Margolis Center

New Publication! Engaging Patients in Real-World Evidence: An Atrial Fibrillation Patient Advisory Board Case Example

02/18/2021

New Publication! Engaging Patients in Real-World Evidence: An Atrial Fibrillation Patient Advisory Board Case Example By Silke Schoch, Manager, Research & Programs  Despite substantial interest

Medicare Access for Patients Rx (MAPRx) Coalition Letter On Part D Payment Modernization Model

02/15/2021

The Medicare Access for Patients Rx (MAPRx) Coalition is writing in opposition to recent changes, announced on January 19, 2021 under the prior administration, allowing

#GetCovered: 2021 Special Enrollment Period Runs from Feb. 15 – May 15

02/15/2021

#GetCovered: 2021 Special Enrollment Period Runs from Feb. 15 – May 15 By Theo Smith, Associate, Marketing & Communications The COVID-19 pandemic is an ongoing national public

Quick Take: Biden Administration Health Care and Health Equity Executive Actions

02/12/2021

Quick Take: Biden Administration Health Care and Health Equity Executive Actions By Maddie Mason, Senior Associate, Policy President Biden has released a series of Executive Orders (EOs) and

Comments Regarding Provisions of the Budget Reconciliation Pursuant to S. Con. Res. 5: House Committee on Energy and Commerce

02/11/2021

 Statement for the Record  House Committee on Energy and Commerce  Comments Regarding Provisions of the Budget Reconciliation Pursuant to S. Con. Res. 5  Our 32

Statement for the Record: Ways and Means Committee, Markup of COVID-19 Relief Measures

02/10/2021

 Our 30 organizations, representing millions of patients and consumers across the country who face serious, acute, and chronic health conditions, write to urge the House