Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
Getting to Know: Theo Smith, Marketing & Communications Associate
09/24/2020Getting to Know: Theo Smith, Marketing & Communications Associate Following is a Q&A to get to know Theo Smith, Marketing & Communications Associate, who began
Real-World Data and Real-World Evidence 101
09/23/2020This webinar will introduce essential terminology related to real-world data (RWD) and real-world evidence (RWE). We will discuss how RWE complements evidence from traditional randomized clinical trials and highlight case examples.
It’s Flu Season – #GetVaccinated
09/23/2020It’s Flu Season – #GetVaccinated By Theo Smith, Associate, Marketing & Communications The 2020-21 flu season has officially begun. It is important for everyone, especially people with chronic diseases
Flu Season Resources
09/21/2020Experts agree. It is critical to get a flu shot, especially during the COVID-19 pandemic. It can help keep you and those around you healthier this winter.
Member Spotlight: National Association for Hearing and Speech Action
09/21/2020By Theo Smith, Associate, Marketing & Communications For millions of Americans, the simple act of communicating can be difficult. Significant numbers of people from the very young
PCORI Real World Evidence (RWE) Advisory Board
09/20/2020PCORI Real World Evidence (RWE) Advisory Board Members Vanessa Boulanger, MSc, Director of Research Programs, National Organization for Rare Disorders Susan dosReis, PhD, Professor and
Register Now! NHC Virtual Science of Patient Engagement Symposium: Including More Voices: Improving Diversity and Representativeness
09/17/2020by Silke Schoch, Manager, Research & Programs The NHC Science of Patient Engagement Symposium is coming up in less than two weeks! Our theme this year is focused on diversity and representativeness
2020 Washington Representatives Retreat
09/16/20202020 Washington Representatives Retreat Event Time: 1:30 – 4:30 p.m. ET Event Location: Virtual Agenda (download) The National Health Council (NHC) hosted a successful virtual 2020 Washington Representatives Retreat. While we
Member Spotlight: The LAM Foundation
09/14/2020By Theo Smith, Associate, Marketing & Communications Lymphangioleiomyomatosis, known as LAM for short, is a rare lung disease that is characterized by an abnormal growth of smooth