Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Lessons Learned from a Patient Group’s Experience Developing a PRO


Lessons Learned from a Patient Group’s Experience Developing a PRO This webinar featured Dory Kranz, CEO of the National Alopecia Areata Foundation (NAAF) and National

Don’t Miss NHC Team Presentations at ISPOR 2019


The NHC team, led by Dr. Eleanor Perfetto, NHC Executive Vice President of Strategic Initiatives, and Dr. Elisabeth Oehrlein, NHC Senior Director of Research and Programs,

Measuring Patient Experiences: Distinguishing Between Patient-Reported Outcomes (PROs) and Patient Preferences


By Silke Schoch, Senior Associate, Programs On April 18, Dr. Pauline McNulty, Vice President of Patient-Reported Outcomes and Dr. Bennett Levitan, Senior Director of Benefit-risk

Infographic: NHC Policy Proposals for Reducing Health Care Costs


We recently updated our health care cost policy recommendations to better reflect the current health care environment and help guide Congress and the Trump administration

CMS Releases Final Marketplace Rule for 2020


By Madison Mason, Policy Associate, National Health Council The Centers for Medicare and Medicaid Services (CMS) recently published its final rule for the 2020 Notice

Join Us in Raising Awareness of these Causes in May


By: Hannah Barnett, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give

Member Spotlight: Charcot-Marie-Tooth Association


By: Kelly Garrity, Senior Director, Membership Services and Development The Charcot-Marie-Tooth Association (CMTA) is the leading patient advocacy organization supporting research to develop treatments for

Patient-Focused Medical Product Case Examples


Patient-Focused Medical Product Development Case Examples About Patient-Focused Medical Product Development Patient-focused medical product development is a mechanism by which stakeholders, including but not limited

NHC Updates its Policy Recommendations for Lowering Health Care Costs


By: Eric Gascho, Vice President of Policy and Government Affairs The National Health Council (NHC) endeavors to promote increased access to affordable, high-value, sustainable health