Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Optimizing Digital Health Trials by Engaging Patients and Sites


Register now for this webinar on Jan. 12 at 2 p.m. Speakers include, Virginia Nido, Global Head, Product Development Industry Collaborations, Genentech; and Cindy Geoghegan, Patient Advocate.

Join Us in Raising Awareness for These Causes This December


By Deasia Lamar, Communications Intern   Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give

Moving Beyond Platitudes to Action Toward Social Justice and Health Equity


Moving Beyond Platitudes to Action Toward Social Justice and Health Equity By Guest Contributor: Bansri Desai, PharmD, PhD Candidate in Pharmaceutical Health Services Research, University of Maryland

Landmark Legislation Sets Up National Emergency Line for Mental Health Support


By Susan Gaffney, Vice President of Membership, Development, and Operations  In October, President Donald Trump signed bipartisan legislation to establish a three-digit national emergency line for mental

“Most-Favored Nation” Drug Pricing Rule


Statement on “Most-Favored Nation” Drug Pricing Rule By Eleanor M. Perfetto, PhD, MS, Interim Chief Executive Officer and Executive Vice President of Strategic Initiatives Today,

NHC and National Minority Quality Forum Issue Health Equity Call to Action


By Jennifer Dexter, Director, Policy  On September 8, the National Health Council (NHC) and National Minority Quality Forum (NMQF) held a Roundtable on “Achieving Health

Multi-Criteria Decision Analysis (MCDA): Can It Help Make Value Assessment More Patient Centered?


Patient-Centered Multi-Criteria Decision Analysis About Multi-Criteria Decision Analysis An overarching goal in value/health technology assessment (V/HTA) is to assess clinical evidence, costs, and social and

MCDA: A Way to Put Patient Concerns Front and Center in Value Assessment?


By Elisabeth Oehrlein and Eleanor Perfetto, National Health Council, and Kimberly Westrich, National Pharmaceutical Council The National Health Council and National Pharmaceutical Council today released

Member Spotlight – Crohn’s & Colitis Foundation


By Theo Smith, Associate, Marketing & Communications   Known collectively as inflammatory bowel disease (IBD), Crohn’s disease and ulcerative colitis are painful, medically incurable diseases that