Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
Observer-reported or Proxy-reported: Is One Better than the Other?
03/19/2020By Aimee Lee Russell, Programs Associate On February 24, the National Health Coucil held a webinar to discuss differences between caregiver-reported and proxy-reported outcomes, which are
Getting to Know: Jennifer Dexter, Policy Director
03/16/2020Getting to Know: Jennifer Dexter, Policy Director Following is a Q&A to get to know Jennifer Dexter, Policy Director, who began working at the National
Coronavirus Preparedness for People with Chronic Diseases
03/13/2020COVID-19 is causing significant concerns globally. During this webinar, the speakers discussed the ways patient groups can assist their members and other constituents in reducing the impact of COVID-19.
National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov Modernization
03/12/2020The National Health Council (NHC) appreciates the opportunity to comment on the National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov modernization. Clinical trials
Potential Aid for Industries Impacted by Coronavirus
03/12/2020Dear Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer: I write regarding prospective federal intervention to support the airline, travel, and other targeted industries impacted
COVID-19 Updates
03/12/2020The National Health Council is monitoring the rapidly changing situation with COVID-19, also known as Coronavirus. You can follow the Washington Post’s live updates here.
NHC Comments on the 2021 Notice of Benefit and Payment Parameters
03/09/2020By Maddie Mason, Senior Associate, Policy The Centers for Medicare and Medicaid (CMS) released their Proposed Rule, entitled “HHS Notice of Benefit and Payment Parameters
As Value Assessment Evolves, The Patient Voice Must Not be Forgotten
03/04/2020As Value Assessment Evolves, The Patient Voice Must Not be Forgotten The blog below was published by the PhRMA Foundation on March 4, 2020. It
April Health Care Reform Action Team
03/03/2020Contact Maddie Mason, Senior Associate, Policy, for more information.