Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Centers for Medicare & Medicaid Services’ (CMS) Medicare Physician Fee Schedule

10/08/2020

CMS-1734-P:  CY 2021 Payment Policies under the Physician Fee Schedule and Other Changes to Part B Payment Policies; Medicare Shared Savings Program Requirements; Medicaid Promoting

The ACA and the Importance of Protecting People with Pre-Existing Conditions

10/08/2020

By Maddie Mason, Senior Associate, Policy Prior to the Patient Protection and Affordable Care Act (ACA) people with pre-existing conditions were often denied health insurance, dropped from their coverage, or charged

Getting to Know: Deasia Lamar, Communications Intern

10/05/2020

Getting to Know: Deasia Lamar, Communications Intern Following is a Q&A to get to know Deasia Lamar, Communications Intern, who began working at the National

Join Us in Raising Awareness for these Causes this October

10/01/2020

By Deasia Lamar, Communications Intern  Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give us

NHC Commitment to Ensure Representativeness in all Policy Work

09/28/2020

By Maddie Mason, Senior Associate, Policy  The National Health Council (NHC) has pledged to ensure that our policy work is inclusive and representative of all populations. In our comment and policymaking opportunities, we are particularly committed to this, and strive to

Sources of RWD: An Introduction to Patient Registries

09/25/2020

Sources of RWD: An Introduction to Patient Registries Moderator: Elisabeth Oehrlein, PhD, MS, Senior Director, Research & Programs, National Health Council Robert McBurney, PhD, Chief Research Officer, Accelerated

Sources of RWD: An Introduction to “Big Data”

09/25/2020

This webinar will introduce big data, an umbrella term used to describe some types of real-world data. Big data can come from health care visits, including information from electronic health records and insurance claims, and it also can come from “non-traditional” sources such as social media and wearable devices.

Major Groups Representing Millions of Patients Release Telehealth Principles

09/24/2020

Major Groups Representing Millions of Patients Release Telehealth Principles For Immediate Release Contact: Laura Mullen, lmullen@rarediseases.org Washington, DC, September 24, 2020 – A coalition of

NHC Corporate Partners Advisory Board Meeting

09/24/2020

Corporate Partners Advisory Board Meeting Event Time: 10:00 a.m. ET – 1:00 p.m. ET Event Location: Virtual This Board is limited to NHC sponsors who