Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
Value Assessment Methods for Single or Short-Term Transformative Therapies (SSTs)
09/06/2019The National Health Council (NHC) is pleased to provide comments on the Institute for Clinical and Economic Review’s (ICER) solicitation for feedback on the, “Value
Patient Community Training on Value Assessment
09/06/2019On Friday, September 6, 2019, the National Health Council convened a training for patients and patient organizations to learn about value assessment. Read the Executive Summary here.
What to Expect from Congress in September
09/05/2019By Eric Gascho, Vice President, Policy and Government Affairs The House and Senate departed for their annual month-long recess in August and will both resume
Join Us in Raising Awareness for These Causes in September
09/04/2019By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give
CMS RFI: Reducing Administrative Burden to Put Patients over Paperwork
08/29/2019By Madison Mason, Policy Associate The Centers for Medicare and Medicaid Services (CMS) released a request for information (RFI), seeking stakeholder opinion regarding their Patients
The FDA’s Sentinel System Monitors Use, Safety, and Effectiveness of Medical Products
08/26/2019The FDA’s Sentinel System Monitors Use, Safety, and Effectiveness of Medical Products By Aimee Lee Russell, Associate, Programs On Wednesday, Aug. 21, Danijela Stojanovic, PharmD,
Getting to Know: Katie Soisson, Senior Associate, Operations and Meetings
08/22/2019Getting to Know: Katie Soisson, Senior Associate, Operations and Meetings Following is a Q&A to get to know Katie Soisson, Senior Associate, Operations and Meetings,
The Sentinel System— An Overview of FDA’s Tools for Assessing Medical Product Safety and Gathering Real-World Evidence
08/21/2019The Sentinel System— An Overview of FDA’s Tools for Assessing Medical Product Safety and Gathering Real-World Evidence This webinar provided an overview of Sentinel’s growing
Member Spotlight: Caregiver Action Network
08/19/2019By Katherine Scott, Senior Manager, Membership Services and Certifications Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of