Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

NHC CEO Marc Boutin on Panel About Bayh-Dole Act

06/06/2019

In 1980, the Bayh-Dole Act was passed. Since then, this piece of legislation has helped address gaps in the intellectual property framework surrounding federally-funded research

Senate Committee on Health, Education, Labor, and Pensions (HELP) Draft Legislation to Reduce Health Care Costs

06/05/2019

The National Health Council (NHC) appreciates the opportunity to provide feedback to the Senate Committee on Health, Education, Labor, and Pensions on draft legislation to

Join Us in Raising Awareness of These Causes in June

06/04/2019

By Hannah Barnett, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give

Lessons Learned from Developing a PRO Measure: The Experience of One Patient Advocacy Group

06/03/2019

Lessons Learned from Developing a PRO Measure: The Experience of One Patient Advocacy Group By Silke Schoch, Senior Associate, Programs On May 14, 2019, Dory

Member Spotlight: Academy of Managed Care Pharmacy

05/30/2019

By Kelly Garrity, Senior Director, Membership Services and Development The Academy of Managed Care Pharmacy (AMCP) helps patients get the medications they need at a

Gwen Darien: ‘But You Seemed So Healthy,’ My Doctor Said. I Had Non-Hodgkin Lymphoma.

05/28/2019

The following is an excerpt from a US News and World Report blog by Gwen Darien, executive vice president for patient advocacy at the Patient

CMS Releases Final Rule on Medicare Advantage and Part D Drug Pricing Rule

05/23/2019

By Madison Mason, Policy Associate, National Health Council On May 16, 2019, The Centers for Medicare and Medicaid Services (CMS) finalized their Medicare Advantage and

ISPOR Panel with NHC’s Dr. Eleanor Perfetto Includes “Lively Discussion” on QALY

05/22/2019

The following is an excerpt from an article in the Journal of Clinical Pathways on a panel Dr. Eleanor Perfetto, Executive Vice President, Strategic Initiatives

What is the Patient Engagement Fair-Market Value Calculator?

05/20/2019

By Silke Schoch, Senior Programs Associate “Fair-market value” (FMV) calculators are tools traditionally used by industry to ensure the compensation rates they are using when