We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
Dear Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer: The 217 undersigned organizations write regarding prospective federal intervention to support the airline, travel, and other
Domains of Patient Centeredness in Value Assessment What are the key characteristics of patient-centered value assessment? Download
The National Health Council’s (NHC’s) Considerations Guide for Patient Organizations Developing Comments on a Value Assessment is intended to be used as a tool by
Enhancing the Patient-Centricity of Value Assessment: Pearls of Wisdom from Members of the Patient Community A list of recommendations developed by members of the patient
Click here for an infographic on value terminology. Below is a list of plain language definitions of terms used in value assessment. Base case analysis:
By Aimee Lee Russell, Programs Associate On February 24, the National Health Coucil held a webinar to discuss differences between caregiver-reported and proxy-reported outcomes, which are
Getting to Know: Jennifer Dexter, Policy Director Following is a Q&A to get to know Jennifer Dexter, Policy Director, who began working at the National
COVID-19 is causing significant concerns globally. During this webinar, the speakers discussed the ways patient groups can assist their members and other constituents in reducing the impact of COVID-19.
The National Health Council (NHC) appreciates the opportunity to comment on the National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov modernization. Clinical trials