2023 Fall International Patient Forum (PDF)
2023 Fall International Patient Forum
Wednesday, October 25, 2023
1:00 – 3:00 p.m. ET
Virtual Event
Preliminary Agenda
1:00 – 1:15 p.m. Welcome & Introductions
Welcome to the International Patient Forum! Introductions include an opportunity for attendees to get
to know each other by responding to the following question: How would you describe your
organization’s involvement in the international arena?
Remarks by:
• Randall Rutta, Chief Executive Officer, National Health Council
1:15 – 1:45 p.m. Review of Spring IPF Summary
Reflect on the topics discussed during the Spring International Patient Forum and add updates, and new
thinking.
Speaker:
• Lisa Butler, Executive Director, GBS|CIDP Foundation International
Reactors:
• Jorey Berry, Chief Executive Officer, Immune Deficiency Foundation
• Others to be Announced
1:45 – 2:10 p.m. International Patient Landscape – Issues, Opportunities, & Challenges
The session will address what’s happening in the global environment, and the impact on patients and
patient groups.
Moderator:
• Randall Rutta, Chief Executive Officer, National Health Council
Speakers:
• PhRMA International Team Member
• Nicholas Brooke, Executive Director, PFMD
2:10 – 2:15 p.m. Break
2:15 – 2:45 p.m. International Patient Conferences – Considerations for Hosting, Participating, and Learning
This session will explore the many aspects of hosting a meeting in the U.S. or abroad that focuses on
global topics for an international audience; and consider how US-based patient groups cover global
issues and meetings in staffing, budgeting, and advancing mission.
Speaker:
• Leanne West, President, International Children’s Advisory Network
Reactor:
• Jeff Todd, CEO, Prevent Blindness
2:45 – 3:00 p.m. Conclusions, Next Steps, & Closing Remarks
The closing session will provide an opportunity for attendees to provide their recommendations to
NHC regarding supporting the mission and membership in international patient health and
advocacy.
Remarks by:
• Lisa Butler, Executive Director, GBS|CIDP Foundation International
• Randall Rutta, Chief Executive Officer, National Health Council
3:00 p.m. Event Adjourns