Current Landscape of Patient-Generated Data and Data Privacy By: Sara Gray, Programs Associate Last December, the National Health Council and Duke-Margolis hosted the fourth webinar in the Real-World Evidence (RWE) […]
Patient Engagement
New Sessions Announced! Join Us at the NHC Science of Patient Engagement Symposium
New Sessions Announced! Join Us at the NHC Science of Patient Engagement Symposium By Silke Schoch, Manager, Research & Programs Register now for the upcoming National Health Council (NHC) Science […]
2021 Science of Patient Engagement Symposium
Register today for the National Health Council’s (NHC’s) 2021 Science of Patient Engagement Symposium: Achieving Trust in and Trustworthiness of Science. The Symposium will take place virtually on October 13 and 14. It will feature presentations by leading experts and the unique opportunity to engage with medical, scientific, and research leaders from patient groups, nonprofit health organizations, government, and industry.
Health Literacy: A Three-Part Series to Support Better Communication
Interested in how to better communicate health and science information? Join the NHC for the final session in this webinar series on Thurs., Oct. 7. Each week we’ve explored how to ensure your advocacy and scientific communications are developed and delivered in a way your audience will understand.
Patient Focused Medicines Development: The use of patient experience data is reaching a ‘tipping point’, say experts
Patient Focused Medicines Development: The use of patient experience data is reaching a ‘tipping point’, say experts The following blog is reposted from the Patient Focused Medicines Development website. It […]
Clinical Outcome Assessment (COA) Webinar Series
Clinical Outcome Assessment (COA) Webinar Series The National Health Council hosted a 12-part webinar series on Clinical Outcome Assessment (COA), intended to help the patient community better equip itself to […]
Project Update: Patient-Centered Core Impact Sets (PC-CIS)
Project Update: Patient-Centered Core Impact Sets (PC-CIS) By Eleanor Perfetto, PhD, MS, Executive Vice President Strategic Initiatives Currently, there is wide variation in the metrics used to study health conditions and their treatments, and […]
NHC Focus On: Patient Engagement
NHC Focus On: Patient Engagement By Theo Smith, Associate, Marketing & Communications Capturing and including the patient voice is central to all the National Health Council (NHC) does. The NHC seeks […]
A Vision for Patient-Centered Core Impact Sets—A Unifying Approach to Patient Centricity
A Vision for Patient-Centered Core Impact Sets—A Unifying Approach to Patient Centricity The following was published on March 10 by The American Journal of Managed Care and is authored by […]
Patient Contracting Tools
Patient Contracting Tools Template Agreement between a Patient or Patient Advocacy Organization and a Pharmaceutical Company User Guide Annotated Guide Principles for Contracting between Patients/Patient Groups and Pharmaceutical Companies for […]