The National Health Council (NHC) announces the theme of the 2022 Science of Patient Engagement Symposium, From Research to Action: Health Equity for All. Over the past couple of years, the COVID-19 pandemic has upended the world, and health inequities among historically underrepresented racial/ethnic groups have magnified. The science of understanding the patient has never been more important. Specifically, health equity research, where diverse patients are at the core of scientific inquiry, is imperative to tackling these issues.
Patient Engagement
An Introduction to Digital Health for the Patient Community
During this three-part series, our guest speakers will introduce attendees to key topics related to digital health.
NHC Comments on FDA-2020-D-2316 for Benefit-Risk Assessment for New Drug and Biological Products; Draft Guidance for Industry
Food and Drug Administration Dockets Management Staff (HFA-305) 5630 Fishers Lane, Rm. 1061 Rockville, MD 20852 RE: FDA-2020-D-2316 for “Benefit-Risk Assessment for New Drug and Biological Products; Draft Guidance for […]
NHC Comments on PDUFA Reauthorization Performance Goals and Procedures FY 2023-2027
PDF Version October 28, 2021 Janet Woodcock, MD Acting Commissioner US Food and Drug Administration 10903 New Hampshire Avenue Silver Spring, MD 20993 RE: PDUFA Reauthorization Performance Goals and Procedures […]
Current Landscape of Patient-Generated Data and Data Privacy
Current Landscape of Patient-Generated Data and Data Privacy By: Sara Gray, Programs Associate Last December, the National Health Council and Duke-Margolis hosted the fourth webinar in the Real-World Evidence (RWE) […]
New Sessions Announced! Join Us at the NHC Science of Patient Engagement Symposium
New Sessions Announced! Join Us at the NHC Science of Patient Engagement Symposium By Silke Schoch, Manager, Research & Programs Register now for the upcoming National Health Council (NHC) Science […]
2021 Science of Patient Engagement Symposium
Register today for the National Health Council’s (NHC’s) 2021 Science of Patient Engagement Symposium: Achieving Trust in and Trustworthiness of Science. The Symposium will take place virtually on October 13 and 14. It will feature presentations by leading experts and the unique opportunity to engage with medical, scientific, and research leaders from patient groups, nonprofit health organizations, government, and industry.
Health Literacy: A Three-Part Series to Support Better Communication
Interested in how to better communicate health and science information? Join the NHC for the final session in this webinar series on Thurs., Oct. 7. Each week we’ve explored how to ensure your advocacy and scientific communications are developed and delivered in a way your audience will understand.
Patient Focused Medicines Development: The use of patient experience data is reaching a ‘tipping point’, say experts
Patient Focused Medicines Development: The use of patient experience data is reaching a ‘tipping point’, say experts The following blog is reposted from the Patient Focused Medicines Development website. It […]
Clinical Outcome Assessment (COA) Webinar Series
Clinical Outcome Assessment (COA) Webinar Series The National Health Council hosted a 12-part webinar series on Clinical Outcome Assessment (COA), intended to help the patient community better equip itself to […]