Watch Eleanor Perfetto, PhD, MS, Executive Vice President of Strategic Initiatives, and Silke Schoch, Manager, Research & Programs, present the NHC’s Patient Engagement Fair Market Value (FMV) Calculator Toolbox on […]
Patient Engagement
Patient Compensation Tools
The NHC & our partners have developed tools, including a first-of-its-kind Fair-Market Value (FMV) Calculator, to assist all stakeholders to confidently enter into ongoing, compliant, & sustainable engagement efforts that effectively drive health care innovation based on patient & caregiver insights, which must be collected in a trusted & high-quality manner.
NHC Fair-Market Value Calculator Demonstration Webinar
NHC Fair-Market Value Calculator Demonstration Webinar This new online FMV calculator can be used to determine compensation for patients, caregivers, and patient groups involved in “patient engagement activities” taking place […]
NEW! Patient Engagement Fair-Market Value Calculator & Compensation Tools
By Silke Schoch, Elisabeth Oehrlein, Eleanor Perfetto We are excited to announce the launch of the NHC Fair-Market Value (FMV) Calculator on June 26, 2020! The NHC’s FMV Calculator will […]
An Update on the NHC’s Tools to Support Sponsor-Patient Engagement: Fair-Market Value Calculator and Engagement Templates
By Silke Schoch, Manager, Research and Programs In an effort to create sustainable, compliant, and patient-friendly agreements between stakeholders and the patient and caregiver community, the National Health Council (NHC) […]
What is the Role of Patient-Reported Data in Outcomes-Based Contracts?
What is the Role of Patient-Reported Data in Outcome-Based Contracts? This webinar, which is part of our Patient-Focused Medical Product Development Webinar Series, featured Sarah Butler, MHS, Head, Client Solutions, […]
Observer-reported or Proxy-reported: Is One Better than the Other?
By Aimee Lee Russell, Programs Associate On February 24, the National Health Coucil held a webinar to discuss differences between caregiver-reported and proxy-reported outcomes, which are not are not the same. […]
National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov Modernization
The National Health Council (NHC) appreciates the opportunity to comment on the National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov modernization. Clinical trials are a vital part of […]
Patient-Journey Mapping Toolbox
Patient Experience Mapping Toolbox Understanding the patient’s journey with disease is critical as it enables understanding the context of the patient experience, the natural history of the disease from the […]
PFMPD Webinar Series: Rare-Disease Listening Sessions with NORD and the FDA
PFMPD Webinar Series: Rare-Disease Listening Sessions with NORD and the FDA By Aimee Lee Russell, Associate, Programs This blog highlights the first webinar in our new Patient-Focused Medical Product Development […]