The following is an excerpt from an op-ed by National Health Council Chief Executive Officer Marc Boutin and FasterCures Executive Director Tanisha Carino, published on July 19, 2019 in The […]
Patient Engagement
Development of the National Health Council Patient Experience Mapping Toolbox
By Elisabeth Oehrlein, PhD, MS, Senior Director, Research and Programs The National Health Council (NHC) has kicked off an exciting new project to further our work in patient engagement. It’s called […]
Core Outcome Sets
Core Outcome Sets This webinar featured Donna Messner, PhD, President & CEO at the Center for Medical Technology Policy. Dr. Messner is President and CEO of the nonprofit Center for […]
Introducing the NHC’s Rubric to Capture the Patient Voice
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The National Health Council Announces the Release of a Rubric to Capture the Patient Voice
By Silke Schoch, Senior Associate, Programs Over the past few decades a cultural shift has been occurring in the health care ecosystem. There is finally broad consensus in the US […]
What is the difference between health-related quality of life (HRQoL) and patient-reported outcomes?
What is the difference between health-related quality of life (HRQoL) and patient-reported outcomes? June 27, 2019 By Aimee Lee Russell, Associate, Programs On June 10, Laurie Burke, MPH, founder of […]
The National Health Council Rubric to Capture the Patient Voice: A Guide to Incorporating the Patient Voice into the Health Ecosystem
The National Health Council Rubric to Capture the Patient Voice: A Guide to Incorporating the Patient Voice into the Health Ecosystem The purpose of the National Health Council (NHC) Rubric […]
What is the Difference Between Health-Related Quality of Life (HRQoL) and Patient-Reported Outcomes?
What is the Difference Between Health-Related Quality of Life (HRQoL) and Patient-Reported Outcomes? This webinar featured Laurie Burke, MPH, Founder of the LORA Group, LLC, and discussed the difference between […]
Lessons Learned from Developing a PRO Measure: The Experience of One Patient Advocacy Group
Lessons Learned from Developing a PRO Measure: The Experience of One Patient Advocacy Group By Silke Schoch, Senior Associate, Programs On May 14, 2019, Dory Kranz, CEO of the National […]
Gwen Darien: ‘But You Seemed So Healthy,’ My Doctor Said. I Had Non-Hodgkin Lymphoma.
The following is an excerpt from a US News and World Report blog by Gwen Darien, executive vice president for patient advocacy at the Patient Advocate Foundation and the National […]