By Silke Schoch, Senior Programs Associate “Fair-market value” (FMV) calculators are tools traditionally used by industry to ensure the compensation rates they are using when engaging doctors, researchers, and other […]
Patient Engagement
Lessons Learned from a Patient Group’s Experience Developing a PRO
Lessons Learned from a Patient Group’s Experience Developing a PRO This webinar featured Dory Kranz, CEO of the National Alopecia Areata Foundation (NAAF) and National Health Council Board member. Ms. […]
Measuring Patient Experiences: Distinguishing Between Patient-Reported Outcomes (PROs) and Patient Preferences
By Silke Schoch, Senior Associate, Programs On April 18, Dr. Pauline McNulty, Vice President of Patient-Reported Outcomes and Dr. Bennett Levitan, Senior Director of Benefit-risk Assessment at Johnson & Johnson […]
Patient-Focused Medical Product Case Examples
Patient-Focused Medical Product Development Case Examples About Patient-Focused Medical Product Development Patient-focused medical product development is a mechanism by which stakeholders, including but not limited to medical product developers, academics, […]
Measuring Patient Experiences: Distinguishing Between Patient-Reported Outcomes and Patient Preferences
Measuring Patient Experiences: Distinguishing Between Patient-Reported Outcomes and Patient Preferences This webinar featured Pauline McNulty, PhD, and Bennett Levitan, MD, PhD, of Johnson & Johnson. In this webinar listeners learned […]
FDA’s Roadmap to Patient-Focused Outcome Measurement in Clinical Trials
By Elisabeth M. Oehrlein, PhD, MS, Senior Director, Research and Programs Patient-centered research and care focuses on outcomes that are most important to patients, which often are about how they […]
COA Glossary: Untangling the Terms in the Third Installment of our COA Webinar Series
By Elisabeth M. Oehrlein, PhD, MS, Senior Director, Research and Programs The NHC’s clinical outcome assessment (COA) webinar series is designed to prepare patient audiences to engage in conversations about […]
Measuring What Matters: Developing a Patient-Centered Engagement Rubric for Quality Measurement
By: Matt Pickering, Senior Director, Research & Quality Strategies, Pharmacy Quality Alliance (PQA), and Mel Nelson, Director, Research & Academic Affairs, PQA Health care quality is increasingly being measured to […]
Successful COAs: It all starts with the “concept of interest” and “context of use”
By Rosie Love, MPH, PhD Candidate at the University of Maryland, Baltimore On February 20, I presented the fourth webinar in the National Health Council’s series on Clinical Outcome Assessment […]
What Do We Mean by Validation of a Measure?
What Do We Mean by Validation of a Measure? This webinar featured Eleanor Perfetto, PhD, MS, Executive Vice President, Strategic Initiatives, at the National Health Council. This webinar described the […]