Use Cases

To help make the PC-CIS Blueprint and the concepts outlined here more tangible, the National Health Council (NHC) partnered with the Arthritis Foundation to embed a use case from the Arthritis Foundation’s INSIGHTS program, a community-based, patient-reported outcomes (PRO) program created in partnership with patients. Over the course of two years, the Arthritis Foundation created and launched INSIGHTS to capture experiences and input from people with arthritis.

Arthritis Use Case

INSIGHTS Program was sponsored and conducted by the Arthritis Foundation

Captured experiences and input from people with arthritis

Collected data to inform patient-reported outcomes selection and development

Conducted over two years

While not an example of a PC-CIS, because they do not yet exist, the steps taken to create the INSIGHTS program reflect many of the principles and methods key to developing a PC-CIS, including patient leadership, and iterative, meaningful patient engagement at each stage of the project or initiative. Throughout the Blueprint, you will find links to relevant aspects of the use case to use as reference.

The later stage of the Blueprint development involves working with patient-advocacy organizations to create a PC-CIS for their community. As these use cases are completed, descriptions and lessons learned from will be added to this document

Disclaimer:

The Patient-Centered Core Impact Sets was created by the National Health Council (NHC). All rights reserved. This document may not be reproduced or distributed in whole or in part without express written permission from NHC. Nor may third parties translate, edit, modify, or otherwise create derivative works from the document. This document is provided for educational purposes only and should not be considered medical or legal advice. The document is provided “AS IS” without any warranties, express or implied, and NHC expressly does not warrant the accuracy, fitness, merchantability, safety, or usefulness for

any purpose of this document.