After three-quarters of a century of mission work, the National Hemophilia Foundation has changed its name
By: Serena Crawford, MMC, National Bleeding Disorder Foundation
After 75 years of being known as the National Hemophilia Foundation (NHF), the organization has changed its name to the National Bleeding Disorders Foundation (NBDF). The official announcement took place at the foundation’s annual Bleeding Disorders Conference in August 2023.
Although the name has changed, the mission remains the same. The organization will continue to serve the hemophilia community as well as other individuals with different kinds of blood and bleeding disorders. This change does reflect the ever-evolving community, such as those with von Willebrand disease, rare factor deficiencies, platelet disorders, and more.
This extensive rebranding effort by the NBDF also includes a new visual aesthetic and logo. Its new logo represents inclusivity in service, which is also reflected in the foundation’s new tagline: Innovate, Educate, Advocate.
“Our new name is one that’s inclusive, trying to represent that entire blood and bleeding disorders community based on our past. We think that this really embraces what we’re going to offer into the future by bringing everybody in and offering them something. No matter what disorder you have, you will find a home in the National Bleeding Disorders Foundation,” said Dr. Len Valentino, CEO of the NBDF.
The NBDF recognizes that it is time to broaden its support to bleeding and blood disorders that do not yet have national support or an advocacy network. While continuing to channel resources to support inheritable blood and bleeding disorders research and educational efforts, the NBDF will also continue to champion 50 national chapters, families, and medical professionals. Additionally, the foundation will continue the expansion of its community services to include health equity, while working to identify and eliminate barriers to care across the nation.
“Now is the time to better reflect all of those that we serve,” said Dawn Rotellini, COO. “For decades, the foundation has served the hemophilia community and other conditions, but even though our work supported people and families impacted by ultra-rare blood and bleeding disorders, as well as those with von Willebrand disease and more, our name and look did not properly reflect that. I’m so excited to introduce the National Bleeding Disorders Foundation — an organization that can now truly say it’s a home to so many.”
The NBDF will continue to roll out the new name and identity in the coming months. Its leaders and staff wish to thank the community in advance for their patience during this transition to the new brand. To learn more, visit www.hemophilia.org, or follow the foundation on its updated social media handles:
- X (formerly known as Twitter): @NBD_Foundation and @NBDFespanol
- LinkedIn: @NationalBleedingDisordersFoundation
- Facebook: @NationalBleedingDisordersFoundation
- TikTok: @natlbdfoundation
- Instagram: @nbd_foundation
General questions about the rebrand can be directed to [email protected]. The NBDF is grateful to the National Health Council (NHC) for supporting this rebranding effort and sharing the news.