By: Silke Schoch, Senior Manager, Research and Programs

Registration is open for the National Health Council’s (NHC’s) upcoming virtual “Multi-Stakeholder Dialogue on Achieving Patient-Centered Core Impact Sets (PC-CIS)”, August 17, 2022, 10:00 a.m. – 3:00 p.m. ET. Register Here.

At this Dialogue meeting, the NHC will explain the concept of patient-centered core impact sets, open the Patient-Centered Core Impact Sets Blueprint for public comment, as well as determine, from potential PC-CIS Blueprint users, the strengths and challenges they anticipate for Blueprint operationalization, and future PC-CIS development and use.

During the Dialogue, attendees can expect to interact and provide their opinion on the Blueprint through polls and via submission of their suggestions via the NHC website. An official 30-day public comment period for the PC-CIS Blueprint will begin on August 1. Registrants will be sent information about how to access and comment on the Blueprint prior to the Dialogue.

The PC-CIS Blueprint covers how to establish patient leadership, how to gather patient impact data, how to prioritize patient impact data, how to gather and prioritize data from other stakeholders, and how to assemble a PC-CIS.

Speakers include:

• Yvette Venable, Vice President, Patient Engagement, ICER
• Jennifer Bright, MPA, Chief Executive Officer, Innovation and Value Initiative
• Richard Willke, PhD, Chief Science Officer, International Society for Pharmacoeconomics and Outcomes Research (ISPOR)
• And more.

In preparation for the Blueprint Dialogue, the NHC hosted three focus groups to introduce the Blueprint to various audiences. Those three focus groups included perspectives from:

• Patient-Groups/Individual Patients
• Industry, Health Technology Assessment (HTA) bodies & Payers
• Comparative Effectiveness Research (CER)/Patient-Centered Outcomes Research (PCOR)/Health Economics and Outcomes Research (HEOR) Clinicians and Scientists

We hope to see you at the Aug. 17 Dialogue!

This Dialogue is funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (EASCS-24850).