Multi-Stakeholder Dialogue on Achieving Patient-Centered Core Impact Sets (PC-CIS)

  • Event Date: Aug. 17, 2022
  • Event Time: 10:00 a.m. ET - 3:00 p.m. ET
  • Event Location: 

The National Health Council (NHC) and its partners have undertaken a process to create a Blueprint for developing patient-centered core impact sets, or PC-CIS, to address inconsistencies between what is important to patients to the information typically collected in research and care. A PC-CIS is a patient-derived and -prioritized list of impacts a disease and/or its treatments have on a patient and his/her life as well as that of their family and caregivers.

The Dialogue meeting is intended to:

  1. Support socializing the PC-CIS concept;
  2. Disseminate the PC-CIS Blueprint; and
  3. Capture from prospective PC-CIS Blueprint users, the strengths, and challenges they anticipate for Blueprint operationalization, and future PC-CIS development and use.

An official 30-day public comment period for the PC-CIS Blueprint begins August 1, 2022. At that point, registrants will be sent information about how to access and comment on the Blueprint in preparation for the Dialogue on August 17, 2022.

Who should attend?

The NHC wants to engage with a variety of organizations and individuals to participate in this initiative and provide valuable feedback on the PC-CIS Blueprint. This virtual meeting is free and open to the public. We encourage anyone interested in value/health technology assessment, patient engagement, and patient-centered research to attend.

This Dialogue is funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (EASCS-24850).