2021 Open Enrollment Resources The Affordable Care Act (ACA) Marketplace is now open! The ACA Marketplace offers health insurance plans for millions of Americans that cover pre-existing conditions. The health […]
Additional Resources
Flu Season Resources
Experts agree. It is critical to get a flu shot, especially during the COVID-19 pandemic. It can help keep you and those around you healthier this winter.
PCORI Real World Evidence (RWE) Advisory Board
PCORI Real World Evidence (RWE) Advisory Board Members Vanessa Boulanger, MSc, Director of Research Programs, National Organization for Rare Disorders Susan dosReis, PhD, Professor and Vice Chair for Research, Pharmaceutical […]
Patient Engagement Open Forum Presentation: Patient Engagement Fair Market Value Calculator Toolbox:
Watch Eleanor Perfetto, PhD, MS, Executive Vice President of Strategic Initiatives, and Silke Schoch, Manager, Research & Programs, present the NHC’s Patient Engagement Fair Market Value (FMV) Calculator Toolbox on […]
Patient Compensation Tools
The NHC & our partners have developed tools, including a first-of-its-kind Fair-Market Value (FMV) Calculator, to assist all stakeholders to confidently enter into ongoing, compliant, & sustainable engagement efforts that effectively drive health care innovation based on patient & caregiver insights, which must be collected in a trusted & high-quality manner.
FMV Calculator Terms of Service
FMV Calculator Terms of Service Disclaimer: The purpose of the Fair Market Value (FMV) Calculator is to provide a guide for patient advocates and pharmaceutical companies that enter into arrangements […]
Building Capacity for Patient Engagement in Real-World Evidence Development
Building Capacity for Patient Engagement in Real-World Evidence Development In January 2020, the National Health Council, in partnership with the Duke-Margolis Center for Health Policy, launched a new project to […]
CMSS-NHC Primer: Enhancing Patient Partnerships
CMSS-NHC Primer: Enhancing Patient Partnerships How Patient Organizations and Medical Societies Can Enhance Patient Engagement in Clinical Registries and Research Read more
Domains of Patient Centeredness in Value Assessment
Domains of Patient Centeredness in Value Assessment What are the key characteristics of patient-centered value assessment? Download
NHC Considerations Guide for Patient Organizations
The National Health Council’s (NHC’s) Considerations Guide for Patient Organizations Developing Comments on a Value Assessment is intended to be used as a tool by patient groups. It can assist […]