Guest Blog: May 7th (5/7) and the 57kb Deletion for Cystinosis Awareness Day By: Heather Fields Rothrock, Member, Board of Directors, Cystinosis Research Network Introduced in 2018, the Cystinosis Research […]
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Patient Care Pathways to Advance Personal, Population & Planet Health
Patient Care Pathways to Advance Personal, Population & Planet Health By: Randall Rutta, CEO, National Health Council The National Health Council (NHC) recognizes the pivotal role of patients to advance […]
Guest Blog: The Powerful Movement Celebrating Limb Loss and Limb Difference in April and Beyond
Guest Blog: The Powerful Movement Celebrating Limb Loss and Limb Difference in April and Beyond By: Cass Isidro, President and Chief Executive Officer, Amputee Coalition The Amputee Coalition is dedicated […]
Minority Health Month Reflection on Community Resilience
Minority Health Month Reflection on Community Resilience By: Karen Mancera-Cuevas, DrPH, MS, MPH, CHES Senior Director, Health Equity April is Minority Health Month. Health campaigns that highlight the importance of […]
Guest Blog: Finding Strength in Community: National Infertility Awareness Week
Guest Blog: Finding Strength in Community: National Infertility Awareness Week By: Simeonne Bookal, Senior Manager, Communications and Programs, RESOLVE: The National Infertility Association National Infertility Awareness Week (NIAW), observed from […]
Biden Administration Addresses Short-Term Health Plans
Biden Administration Addresses Short-Term Health Plans By: Allen Pinn, Policy Coordinator In a big win for people with chronic diseases and disabilities, the Biden Administration recently responded to calls from […]
Guest Blog: Sjögren’s: A Misunderstood and Underdiagnosed Autoimmune Disease
Guest Blog: Sjögren’s: A Misunderstood and Underdiagnosed Autoimmune Disease By: Janet E. Church, President and CEO, Sjögren’s Foundation April is Sjögren’s Awareness Month, a time designated to amplify awareness about […]
Get to Know: Micah Nation, Director, Executive Office
Get to Know: Micah Nation, Director, Executive Office Tell us something about you that no one would know from reading your resume. Beyond what my resume reflects, I am […]
NHC Conducts Training on its Patient Experience Mapping to the American Kidney Fund
NHC Conducts Training on its Patient Experience Mapping to the American Kidney Fund By: Equity, Research & Programs Portfolio The National Health Council’s (NHC), Patient Experience Mapping Toolbox (PEMT) was […]
Future of the Safe Step Act
Future of the Safe Step Act By: Allen Pinn, Policy Coordinator Step therapy, sometimes referred to as ‘fail first’ or ‘step protocol,’ has severe consequences for patients who need care. […]