By Jennifer Dexter, Director, Policy The Patient-Centered Outcomes Research Institute (PCORI) is a private, non-profit and tax-exempt organization that is tasked with coordinating and supporting comparative clinical effectiveness research (CER). […]
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What are Clinician-Reported Outcomes (ClinROs)?
What are Clinician-Reported Outcomes (ClinROs)? By Aimee Lee Russell, Associate, Programs On Thursday, September 12, John Powers, MD, FACP, FIDSA, Professor of Clinical Medicine, School of Medicine, at George Washington […]
Member Spotlight: FH Foundation
Member Spotlight: The Familial Hypercholesterolemia (FH) Foundation By: Katherine Scott, Senior Manager, Member Services and Certifications The FH Foundation was founded in 2012 by their CEO Katherine Wilemon who is […]
Getting to Know: Katherine Scott, Senior Manager, Membership Services and Certifications
Getting to know: Katherine Scott, Senior Manager, Membership Services and Certifications Following is a Q&A to get to know Katherine Scott, Senior Manager, Membership Services and Certifications, who began working […]
Back to School with the NHC: Patient Community Training on Value Assessment
By Aimee Lee Russell, Associate, Programs This training was funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (8620-NHC). On Friday, September 6, the National Health […]
Patient-Reported Outcomes in Orphan Drug Labels Approved by the US Food and Drug Administration
Dr. Eleanor Perfetto, NHC Executive Vice President, Strategic Initiatives, co-authored a paper titled, “Patient-Reported Outcomes in Orphan Drug Labels Approved by the US Food and Drug Administration,” which was published […]
Member Spotlight: Servier U.S.
By Katherine Scott, Senior Manager, Membership Services and Certifications Servier Pharmaceuticals is a commercial-stage pharmaceutical company with current treatments for patients with acute lymphoblastic leukemia (ALL). Building out their U.S. […]
What to Expect from Congress in September
By Eric Gascho, Vice President, Policy and Government Affairs The House and Senate departed for their annual month-long recess in August and will both resume session next Monday. Before their […]
Join Us in Raising Awareness for These Causes in September
By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give us the opportunity to rally […]
CMS RFI: Reducing Administrative Burden to Put Patients over Paperwork
By Madison Mason, Policy Associate The Centers for Medicare and Medicaid Services (CMS) released a request for information (RFI), seeking stakeholder opinion regarding their Patients over Paperwork initiative. Patients over […]