2016 Health Leadership Conference

Inspire. Influence. Impact.

The National Health Council is dedicated to bringing together all voices across the health care community to put patients first. It was with that in mind that the 2016 Annual Health Leadership Conference was opened up to include the chief executive officers and volunteer leaders from member nonprofit organizations and professional and membership associations, in addition to NHC member patient advocacy organizations. Sponsors also were in attendance for the first time.

The theme of the 2016 conference was Inspire. Influence. Impact. and it focused on topics surrounding how NHC members can define, measure, and communicate their impact on the health care landscape. Over the two-day conference, participants had the opportunity to learn about important issues facing the patient advocacy community, listen to peers from across all sectors of the health community, and discuss the challenges and opportunities that health care organizations face.

Presentations from the 2016 conference are available for download below.

NHC’s Strategic Plan: A Bold Vision for the Future

Marc Boutin, Chief Executive Officer, National Health Council

Defining, Measuring, and Communicating Your Impact

Jason Saul, Founder and CEO, Mission Measurement; Adjunct Lecturer, Kellogg School of Management, Northwestern University

Impact Reactor Panel

Cyndi Zagieboylo, Conference Chair and Chair Elect, NHC Board of Directors; President and Chief Executive Officer, National Multiple Sclerosis Society


Gary Reedy, Chief Executive Officer, American Cancer Society

John Schall, Chief Executive Officer, Caregiver Action Network

Ann Palmer, Chief Executive Officer, Arthritis Foundation

Measuring Program Impact: Best Practices

Deanna Darlington, Director, Government Affairs, Amgen

Measuring Program Impact: Case Studies

Eleanor Perfetto, Senior Vice President, Strategic Initiatives, National Health Council


Stephanie Chisolm, Director of Education and Research, Bladder Cancer Advocacy Network

Vicki Kennedy, LCSW, Vice President, Program Development and Delivery, Cancer Support Community

Michael Sapienza, Chief Executive Officer, Colon Cancer Alliance

Rebecca G. Block, PhD, Director of Research and Advocacy, Critical Mass

Communicating Your Impact Story

Peter Segall, General Manager, Edelman

Leveraging Patient Engagement as Part of Your Business Model

Eric Letsinger, Founder, Quantified Ventures

Case Studies in Patient Engagement

Marc Boutin, Chief Executive Officer, National Health Council


Randy Beranek, Chief Executive Officer, National Psoriasis Foundation

Craig Kephart, Executive Director, COPD Foundation

Steve Taylor, Chief Executive Officer, Sjögren’s Syndrome Foundation

Mary McGowan, Chief Executive Officer, WomenHeart: The Coalition for Women with Heart Disease

Achieving Impact in an Evolving Health Care Landscape

David Meeker, Executive Vice President, Head Sanofi-Genzyme

Trends Shaping the Health Care Landscape

Francis Collins, MD, PhD, Director, National Institutes of Health


The 29th Annual Health Leadership Conference was made possible with the support of

Platinum Premier Sponsors
  • Amgen
  • Johnson & Johnson
  • Merck & Co.
  • Pharmaceutical Research and Manufacturers of America
  • Pfizer Inc
Premier Sponsors
  • Abbott
  • Bristol-Myers Squibb Company
  • Eli Lilly and Company
  • Novartis Pharmaceuticals Corp
  • Sanofi
Leading Sponsors
  • National Pharmaceutical Council
Supporting Sponsors
  • Advanced Medical Technology Association
  • Grifols

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