Hydrocephalus is a chronic, neurological condition caused by an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles, resulting in pressure on the brain. It affects […]
Archives
Osteogenesis Imperfecta Foundation
Osteogenesis imperfecta (OI) is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. The mission of the OI Foundation is to improve the […]
Bone Health and Osteoporosis Foundation
Osteoporosis is a bone disease that occurs when the body loses too much bone, makes too little bone, or both. As a result, bones become weak and may break from […]
The Marfan Foundation
Marfan syndrome is a genetic disorder that affects the body’s connective tissue. Connective tissue holds all the body’s cells, organs and tissue together. The Marfan Foundation’s mission is to save […]
National Bleeding Disorders Foundation
Bleeding disorders are a group of disorders that share the inability to form a proper blood clot. Symptoms include extended bleeding after injury, surgery, trauma, or menstruation. The National Bleeding […]
National Foundation for Ectodermal Dysplasias
Ectodermal Dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth. When a person has at least two types of abnormal ectodermal features, the individual […]
Alpha-1 Foundation
Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition, that is passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or […]
ALS Association
ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. The ALS Association works to discover treatments and a […]
American Liver Foundation
Liver disease involves any condition that damages the liver and prevents it from functioning well. There is an ever-increasing number of people with liver diseases such as hepatitis C, non-alcoholic […]
Amputee Coalition
An amputation is the loss of a limb, or birth condition in which a person is born with a limb difference. Almost 2 million Americans have experienced amputation or were […]
