Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Join Us in Raising Awareness for These Causes in March

03/01/2021

Join Us in Raising Awareness for These Causes in March By Deasia Lamar, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and

2021 Health Leadership Conference Inspires, Engages Patient Group Leaders

02/26/2021

2021 HEALTH LEADERSHIP CONFERENCE INSPIRES, ENGAGES PATIENT GROUP LEADERS By Jennifer Schleman, Assistant Vice President, Marketing & Communications Patient group and nonprofit Chief Executive Officers,

Webinar Summary: Sources of Real-World Data (RWD) – An Introduction to “Big Data”

02/24/2021

Webinar Summary: Sources of Real-World Data (RWD) – An Introduction to “Big Data” By Sara Gray, Associate, Programs   On Nov. 6, 2020, the National Health Council (NHC) along

Case Examples of Patient-Centered Real-World Evidence

02/22/2021

Case Examples of Patient-Centered Real-World Evidence Moderator: Elisabeth Oehrlein, PhD, MS, Assistant Vice President, Research and Programs, National Health Council Angela Dobes, MPH, Vice President,

Protected: Patient Contracting Tools

02/18/2021

There is no excerpt because this is a protected post.

Data Capture in Clinical Settings

02/18/2021

Data Capture in Clinical Settings Event Time: 12:00 – 12:45 p.m. ET Event Location: Virtual, Zoom Moderator: Gillian Sanders Schmidler, PhD, Deputy Director, Duke-Margolis Center

New Publication! Engaging Patients in Real-World Evidence: An Atrial Fibrillation Patient Advisory Board Case Example

02/18/2021

New Publication! Engaging Patients in Real-World Evidence: An Atrial Fibrillation Patient Advisory Board Case Example By Silke Schoch, Manager, Research & Programs  Despite substantial interest

Medicare Access for Patients Rx (MAPRx) Coalition Letter On Part D Payment Modernization Model

02/15/2021

The Medicare Access for Patients Rx (MAPRx) Coalition is writing in opposition to recent changes, announced on January 19, 2021 under the prior administration, allowing

#GetCovered: 2021 Special Enrollment Period Runs from Feb. 15 – May 15

02/15/2021

#GetCovered: 2021 Special Enrollment Period Runs from Feb. 15 – May 15 By Theo Smith, Associate, Marketing & Communications  The COVID-19 pandemic is an ongoing national public