Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
Join Us in Raising Awareness for These Causes in March
03/01/2021Join Us in Raising Awareness for These Causes in March By Deasia Lamar, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and
2021 Health Leadership Conference Inspires, Engages Patient Group Leaders
02/26/20212021 HEALTH LEADERSHIP CONFERENCE INSPIRES, ENGAGES PATIENT GROUP LEADERS By Jennifer Schleman, Assistant Vice President, Marketing & Communications Patient group and nonprofit Chief Executive Officers,
Webinar Summary: Sources of Real-World Data (RWD) – An Introduction to “Big Data”
02/24/2021Webinar Summary: Sources of Real-World Data (RWD) – An Introduction to “Big Data” By Sara Gray, Associate, Programs On Nov. 6, 2020, the National Health Council (NHC) along
Case Examples of Patient-Centered Real-World Evidence
02/22/2021Case Examples of Patient-Centered Real-World Evidence Moderator: Elisabeth Oehrlein, PhD, MS, Assistant Vice President, Research and Programs, National Health Council Angela Dobes, MPH, Vice President,
Protected: Patient Contracting Tools
02/18/2021There is no excerpt because this is a protected post.
Data Capture in Clinical Settings
02/18/2021Data Capture in Clinical Settings Event Time: 12:00 – 12:45 p.m. ET Event Location: Virtual, Zoom Moderator: Gillian Sanders Schmidler, PhD, Deputy Director, Duke-Margolis Center
New Publication! Engaging Patients in Real-World Evidence: An Atrial Fibrillation Patient Advisory Board Case Example
02/18/2021New Publication! Engaging Patients in Real-World Evidence: An Atrial Fibrillation Patient Advisory Board Case Example By Silke Schoch, Manager, Research & Programs Despite substantial interest
Medicare Access for Patients Rx (MAPRx) Coalition Letter On Part D Payment Modernization Model
02/15/2021The Medicare Access for Patients Rx (MAPRx) Coalition is writing in opposition to recent changes, announced on January 19, 2021 under the prior administration, allowing
#GetCovered: 2021 Special Enrollment Period Runs from Feb. 15 – May 15
02/15/2021#GetCovered: 2021 Special Enrollment Period Runs from Feb. 15 – May 15 By Theo Smith, Associate, Marketing & Communications The COVID-19 pandemic is an ongoing national public