Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
Patient Experience Map
08/25/2021Patient Experience Mapping Toolbox About the Toolbox The Patient Experience Mapping Toolbox is a set of publicly available resources to help researchers engage and document
Washington Representatives Summer Meeting
06/02/2023The annual Washington Representatives Retreat is an excellent way for NHC nonprofit members to connect and gather to discuss major health policy developments, hear from prominent speakers, provide input in developing NHC’s 2023 public policy priorities, and network with other public policy and government relations professionals from voluntary health agencies and nonprofit organizations. For the first time since 2019, the meeting will be held in person in Annapolis, MD. We hope to see you there!
Summary Released! 2023 Science of Patient Engagement Symposium: “Patient Empowerment in The Digital Health Era”
06/02/2023Summary Released! 2023 Science of Patient Engagement Symposium: “Patient Empowerment in The Digital Health Era” By: The NHC’s Research & Program’s Team Thank you to
NHC Legislative Health Care Update
05/30/2023NHC Legislative Health Care Update By: Allen Pinn, Coordinator, Policy As the 118th Congress heads into summer, multiple health care issues have taken centerstage. Below
NHC Biosimilars Briefing
05/26/2023This briefing will focus on the value biosimilars hold for patient communities and our health care system. An overview of the resources available for increasing the understanding of biosimilars and the role they play in patient health will be provided. Discussion will address U.S. speed of adoption compared to European counterparts and explore the potential market barriers which can impede access to new treatment options for patients.
The Time is Now for Bold Action on Asthma and Allergies
05/25/2023The Time is Now for Bold Action on Asthma and Allergies By: Sanaz Eftekhari, Chief Business Development Officer and Vice President of Research, Asthma and
Guest Post: Why Struggle? Simple tools to make life with arthritis and mobility challenges a little easier
05/24/2023Guest Post: Why Struggle? Simple tools to make life with arthritis and mobility challenges a little easier BONUS: Stretches you can try from your chair
NHC Comments on Information Collection Request for Drug Price Negotiation by IRA
05/22/2023NHC Comments on Information Collection Request for Drug Price Negotiation by IRA (PDF) May 22, 2023 Chiquita Brooks-LaSure Administrator Centers for Medicare & Medicaid Services
Advances in Celiac Disease Research Funding: Honoring Our Dedicated Patient Community
05/22/2023Advances in Celiac Disease Research Funding: Honoring Our Dedicated Patient Community By Marilyn G. Geller, Chief Executive Officer, Celiac Disease Foundation During May, Celiac Disease
Recognizing Health Disparities Among Asian American, Native Hawaiians, and Other Pacific Islander Populations
05/19/2023Recognizing Health Disparities Among Asian American, Native Hawaiians, and Other Pacific Islander Populations By: Lillian Witting, MPH, Coordinator, Research, Education and Programs Although the historical