Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
Call for Comments: Patient-Centered Value Model Rubric and Get-Ready Checklist for Patient Organizations
12/20/2019Due: February 3, 2020 In 2016, the National Health Council (NHC) released two tools to help the patient community prepare for value assessment: the Patient-Centered
A Dialogue on Patient-Centered Value Assessment: Overcoming Barriers to Amplify the Patient Voice
12/20/2019A Dialogue on Patient-Centered Value Assessment: Overcoming Barriers to Amplify the Patient Voice Read the full paper. On July 31, 2018, the National Health Council
Value Work Group
12/20/2019Value Work Group The National Health Council’s Value Work Group meets on a regular basis by teleconference to share and learn from each other’s’ experiences,
Policy Proposals for Reducing Health Care Costs
12/20/2019Our Policy Proposals for Reducing Health Care Costs The NHC released new recommendations in Sept. 2021. Read them here. The National Health Council (NHC) envisions
Patient Perspectives on Real-World Evidence: Enhancing Engagement, Understanding, and Trust
12/20/2019Patient Perspectives on Real-World Evidence: A Roundtable to Gather Views, Needs, and Recommendations The topic of real-world evidence (RWE) has gained considerable attention recently. As
Tools to Support Sponsor-Patient Engagement: Fair-Market-Value Calculator and Engagement Templates
12/20/2019Sponsor-Patient Engagement Toolbox Eleanor Perfetto, PhD, MS, Executive Vice President of Strategic Initiatives, and Silke Schoch, Manager, Research & Programs, will present the NHC’s Patient
Updates on Congressional Efforts to Lower the Costs of Prescription Drugs
12/18/2019By Maddie Mason, Senior Associate, Policy The 116th Congress has made lowering the costs of prescription drugs one of their top priorities in 2019, as
Patient-Focused Drug Development: Methods to Identify What Is Important to Patients; Draft Guidance for Industry, Food and Drug Administration Staff, and Other Stakeholders
12/18/2019The National Health Council (NHC) is pleased to provide comments on the Food and Drug Administration’s solicitation for comments Patient-Focused Drug Development: Methods to Identify
Congressional Efforts to Address Drug Pricing – Prescription Drug Pricing Reduction Act (PDPRA)
12/17/2019The National Health Council (NHC) appreciates this opportunity to provide feedback on Congressional efforts to address drug pricing including H.R. 3, the Lower Drug Costs