Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Patient-Reported Outcomes in Orphan Drug Labels Approved by the US Food and Drug Administration

Dr. Eleanor Perfetto, NHC Executive Vice President, Strategic Initiatives, co-authored a paper titled, “Patient-Reported Outcomes in Orphan Drug Labels Approved by the US Food and

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Member Spotlight: Servier U.S.

By Katherine Scott, Senior Manager, Membership Services and Certifications Servier Pharmaceuticals is a commercial-stage pharmaceutical company with current treatments for patients with acute lymphoblastic leukemia

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NHC Comments on Value Assessment Methods for Single or Short-Term Transformative Therapies (SSTs)

The National Health Council (NHC) is pleased to provide comments on the Institute for Clinical and Economic Review’s (ICER) solicitation for feedback on the, “Value

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Patient Community Training on Value Assessment

On Friday, September 6, 2019, the National Health Council convened a training for patients and patient organizations to learn about value assessment. Read the Executive Summary here.

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What to Expect from Congress in September

By Eric Gascho, Vice President, Policy and Government Affairs The House and Senate departed for their annual month-long recess in August and will both resume

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Join Us in Raising Awareness for These Causes in September

By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give

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CMS RFI: Reducing Administrative Burden to Put Patients over Paperwork

By Madison Mason, Policy Associate The Centers for Medicare and Medicaid Services (CMS) released a request for information (RFI), seeking stakeholder opinion regarding their Patients

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The FDA’s Sentinel System Monitors Use, Safety, and Effectiveness of Medical Products

The FDA’s Sentinel System Monitors Use, Safety, and Effectiveness of Medical Products By Aimee Lee Russell, Associate, Programs On Wednesday, Aug. 21, Danijela Stojanovic, PharmD,

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Getting to Know: Katie Soisson, Senior Associate, Operations and Meetings

Following is a Q&A to get to know Katie Soisson, Senior Associate, Operations and Meetings, who has been with the NHC since 2017. Putting Patients

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