Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Patient Perspectives on Real-World Evidence: Enhancing Engagement, Understanding, and Trust

12/20/2019

Patient Perspectives on Real-World Evidence: A Roundtable to Gather Views, Needs, and Recommendations The topic of real-world evidence (RWE) has gained considerable attention recently. As

Tools to Support Sponsor-Patient Engagement: Fair-Market-Value Calculator and Engagement Templates

12/20/2019

Sponsor-Patient Engagement Toolbox Eleanor Perfetto, PhD, MS, Executive Vice President of Strategic Initiatives, and Silke Schoch, Manager, Research & Programs, will present the NHC’s Patient

Updates on Congressional Efforts to Lower the Costs of Prescription Drugs

12/18/2019

By Maddie Mason, Senior Associate, Policy The 116th Congress has made lowering the costs of prescription drugs one of their top priorities in 2019, as

NHC Comments on Patient-Focused Drug Development: Methods to Identify What Is Important to Patients; Draft Guidance for Industry, Food and Drug Administration Staff, and Other Stakeholders

12/18/2019

The National Health Council (NHC) is pleased to provide comments on the Food and Drug Administration’s solicitation for comments Patient-Focused Drug Development: Methods to Identify

NHC Comments on Congressional Efforts to Address Drug Pricing

12/17/2019

The National Health Council (NHC) appreciates this opportunity to provide feedback on Congressional efforts to address drug pricing including H.R. 3, the Lower Drug Costs

Member Spotlight: The Trevor Project

12/17/2019

By Katherine Scott, Senior Manager, Member Services & Certifications The Trevor Project was founded in 1998 by the creators of the Academy Award-winning short film

Letter to Representatives DeGette & Upton on the “Cures 2.0” Initiative

12/16/2019

Dear Representative DeGette and Representative Upton: The National Health Council (NHC) appreciates this opportunity to provide feedback on your work to help advance medical research

What Should Patient Groups tell their Members about the Flu Vaccine?

12/16/2019

What Should Patient Groups tell their Members about the Flu Vaccine? By Aimee Lee Russell, Associate, Programs On Friday, December 6, the National Health Council

Gottlieb: Listening to Patients a Priority

12/11/2019