Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

How An Advocacy Group Elevates The Patient Voice In Research And Clinical Trials


Stevan W. Gibson, president and CEO of the Lupus Foundation of America wrote a guest column for the Clinical Leader on “How An Advocacy Group

It all starts with the “concept of interest” and “context of use”


Successful COAs: It all starts with the “concept of interest” and “context of use” This webinar featured T. Rosie Love, MPH, University of Maryland School

Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2020


The National Health Council (NHC) appreciates the opportunity to comment on the Centers for Medicare & Medicaid Services’ (CMS’) Proposed Rule entitled, “HHS Notice of

2019 Health Leadership Conference


2019 Health Leadership Conference “The New Normal: Access, Affordability, and Sustainability” The National Health Council’s 2019 Health Leadership Conference gathered more than 120 chief executives

CDC: Flu shot kept about 50% from going to doctor


The Centers for Disease Control and Prevention released new data about the current flu season. Below is an exerpt from an article by The Hill.

Institute for Clinical and Economic Review’s (ICER) Unsupported Price Increase Assessment


The National Health Council (NHC) is pleased to provide comments on the Institute for Clinical and Economic Review’s (ICER) solicitation for feedback on the Unsupported

Glossary of Patient Engagement Terms


The definitions of these terms, which includes Family Caregiver, Meaningful Engagement, and Patient-Focused Drug Development, stem largely from our patient engagement work, including our ‘Patient-Focused

Member Spotlight: Axovant Gene Therapies


By: Kelly Garrity, Senior Director, Membership Services and Development New NHC member Axovant operates with a sense of urgency to develop and deliver innovative gene

Congress’ and HHS’ Health Care Policy Priorities: Lowering Drug Costs


By: Eric Gascho, Vice President of Policy and Government Affairs Both the Senate Finance Committee and the House Committee on Oversight and Reform focused their