Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
Member Spotlight: Alpha-1 Foundation
03/26/2020By Katherine Scott, Senior Manager, Membership Services and Certifications The Alpha-1 Foundation was founded in 1995 by John Walsh, Sandy Lindsey, and Susan Stanley, three
Coronavirus Preparedness For People With Chronic Diseases: What Do Caregivers Need to Know?
03/23/2020Coronavirus Preparedness For People With Chronic Diseases: What do Caregivers Need to Know? Event Time: 12:00 – 1:00 p.m. ET Event Location: Webex Co-Sponsored by
What is the Role of Patient-Reported Data in Outcomes-Based Contracts?
03/23/2020What is the Role of Patient-Reported Data in Outcome-Based Contracts? This webinar, which is part of our Patient-Focused Medical Product Development Webinar Series, featured Sarah
25 Patient and Consumer Groups Celebrate the ACA on its 10th Birthday
03/23/2020Washington, D.C., March 23, 2020 –25 patient and consumer groups representing millions of people nationwide with pre-existing health conditions issued the following statement in celebration
COVID-19 and Mental Health
03/23/2020By Maddie Mason, Senior Associate, Policy The novel Coronavirus, also known as COVID-19, was categorized as a pandemic by the World Health Organization (WHO) on
ICER’s Value Assessment Framework: An Overview of the 2020 Value Framework
03/20/2020ICER’s Value Assessment Framework: An Overview of the 2020 Value Framework Event Time: 12:00 p.m. ET Event Location: Webex This webinar featured Steven Pearson, MD,
Potential Aid for Patient and Community-Based Organizations Impacted by Coronavirus
03/20/2020Dear Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer: The 217 undersigned organizations write regarding prospective federal intervention to support the airline, travel, and other
Domains of Patient Centeredness in Value Assessment
03/19/2020Domains of Patient Centeredness in Value Assessment What are the key characteristics of patient-centered value assessment? Download
NHC Considerations Guide for Patient Organizations
03/19/2020The National Health Council’s (NHC’s) Considerations Guide for Patient Organizations Developing Comments on a Value Assessment is intended to be used as a tool by