Schedule
2023 Science of Patient Engagement Symposium Agenda (PDF)
2023 Science of Patient Engagement Symposium
Patient Empowerment in the Digital Health Era
Monday, May 8, 2023 | 8:00 am – 6:00 pm ET
Location:
National Press Club
529 14th St. NW, 13th Floor
Washington, DC 20045
Monday, May 8
8:00 a.m. Registration Open
8:30 – 9:15 a.m. Networking Breakfast
9:15 – 9:30 a.m. Welcome & Introductions
Remarks By:
• Kenneth Mendez, MBA, CEO & President, Asthma and Allergy Foundation of America (AAFA)
• Randall Rutta, MA, Chief Executive Officer, National Health Council
• Omar A. Escontrías, DrPH, MPH, Senior Vice President, Equity, Research & Programs, National
Health Council
• Leah Howard, JD, President and CEO, National Psoriasis Foundation
9:30 – 10:00 a.m. Keynote Speaker
• Robert M. Califf, MD, MACC, Commissioner of Food and Drugs, Food and Drug Administration
10:00 – 10:50 a.m. Session 1: Bridging the Digital Divide: Disparities and Diagnosis Through Telehealth.
The increased use of telehealth has been instrumental in access to care on a global scale over the last
several years as a result of the COVID-19 pandemic. However, patients from historically under resourced
and underserved population continue to face systemic and insurmountable challenges such as
broadband access and difficulty with obtaining a diagnosis. As the Public Health Emergency Declaration
comes to an end, this session looks to discuss the benefits and limitations of telehealth as a method of
direct care delivery to patients of greatest need.
Moderator:
• Beth Mathews-Bradshaw, Vice President of Patient Engagement and Research, Alliance for
Aging Research
Guest speaker:
• Nicol Turner Lee, PhD, Senior Fellow of Governance Studies and Director for the Center of
Technology Innovation, Brookings Institution
10:50 – 11:00 a.m. Break
11:00 – 11:50 a.m. Session 2: Enhancing Patient Engagement in Medical Device Development
The Food and Drug Administration recommends using patient preference information (PPI) to provide
benefit-risk assessment during the study and research design process. This leaves room for organizations
to develop opportunities to better leverage PPI and elevate patient engagement. This session will be an
in-depth perspective on the diversity, equity, and inclusion of the patient voice in the development and
regulation of medical devices.
Moderator:
• Julie Hoffman, Patient Advocate and Caregiver, Chair for Advocacy, American Diabetes
Association, Arizona Chapter
Panelist:
• Kathryn Capanna, Deputy Division Director, Division of All Hazards Response, Science and
Strategic Partnerships, FDA
• Cherise Shockley, Patient Advocate
• Chris Gibbons, MD, Interim Executive Director, National Health IT Collaborative for the
Underserved
11:50 a.m. – 12:40 p.m. Lunch
12:40 – 1:30 p.m. Session 3: Digital Innovation: The role of Google and YouTube in Connecting and Engaging Mental
Health Patients on Online Platforms
Online resources such as Google and YouTube have revolutionized the world of digital technology.
The use of immersive health online information has equipped patients with the accessibility to connected
care. This session will examine Google Health’s artificial intelligence to assist in mental
health and other health care challenges from consumers to researchers.
Moderator:
• Katie Lee, Director of Communications, Mental Health America
Guest Speaker:
• Megan Jones Bell, PsyD, Clinical Director of Consumer and Mental Health, Google Health
1:30 – 1:40 p.m. Break
1:40 – 2:20 p.m. Session 4: Fireside Chat: Intersectional Perspectives in Medical Technology
Despite the rising awareness for accessibility and personalized design of assistive technology, providers
are often unprepared when patients visit, from non-accessible medical tools to communication barriers.
During this session, panelists will discuss their current experiences with medical and/or assistive devices
and explore the future of digital health technology for patient engagement.
Moderator:
• Dawn Morgan, Patient Advocate and Business Owner, Bates & Blue, LLC
Panelists:
• Michael R. Crawford, MBA, MHL, Associate Dean for Strategy, Outreach, and Innovation,
Howard University College of Medicine
• Tanisha Armstrong, Patient Advocate
• Jorge A. Rodriguez, MD, Clinician-investigator, Brigham and Women’s Hospital
2:20 – 2:30 p.m. Break
2:30 – 3:20 p.m. Session 5: AI: An Intervention Point for Patient Shared-Decision Making
Artificial intelligence (AI) and machine learning is a rising field of study in the health care ecosystem. In
direct point of care, it is increasingly being used to analyze data that enables providers to spend more
time with patients. But with bias in the system, what information is at risk and how does AI play a role in
health care decisions? This session will delve into this new field and its potential to affect the type of
opportunities and quality of shared decision making between providers and patients
Moderator:
• Celina Gorre, MPH, MPA, CEO, WomenHeart: The National Coalition for Women with Heart
Disease
Guest Speaker:
• Jennifer Hall, PhD, Chief for Data Science, American Heart Association
3:20 – 3:30 p.m. Break
3:30 – 4:20 p.m. Session 6: Patient Experience Healthcare Metrics.
Have you wondered where your smart phone or watch health data are stored? How is it being used?
Who uses it? Scientists have studied how quality metrics are leveraged to improve the patient
experience. By quantifying patient metrics, this session will explore the science of digital and
personalized data in patient-centered quality measures
Moderator:
• Elridge Proctor, MPA, Senior Director, Government Affairs, GO2 for Lung Cancer
Guest Speaker:
• Brian Anderson, MD, Chief Digital Health Physician, MITRE
4:20 – 4:30 p.m. Closing remarks and symposium concludes
Remarks By:
• Omar A. Escontrías, DrPH, MPH, Senior Vice President, Equity, Research & Programs,
National Health Council
4:30 – 6:00 p.m. Reception