FDA’s Roadmap to Patient-Focused Outcome Measurement in Clinical Trials This webinar featured Laurie Burke, MPH, Founder of the LORA Group, LLC introduced participants to a document, the Roadmap, developed by […]
Patient Engagement
NPC: Bringing Patient-Centeredness to Quality Measurement in Health Care
The following is an exerpt from a new National Pharmaceutical Council (NPC) blog. Quality measures can help payers to reward better care, providers to take action to improve care, and […]
Case Study Shows Benefits of Engaging Employees in Health Benefit Design
As open enrollment season for health insurance gets underway, a case study released this week shows that employees who are meaningfully engaged in deliberating and designing their health care benefits […]
Watch: NHC Webinar on Patient-Reported Outcomes and Patient-Centered Outcomes
In patient-centered research and care, we focus on the outcomes most important to patients. Often, patients tell us that what is most important to them is how they feel and […]
Patient Reported Outcomes and Patient Centered Outcomes
Patient Reported Outcomes and Patient Centered Outcomes Patient-centered research and care focuses on the outcomes most important to patients. Often, patients tell us that what is most important to them […]
Meaningful Patient Engagement: Now or Never?
By: Jason Harris, Associate Director, Policy & Programs In 1997, a little more than twenty years ago, Steve Jobs stated what is now his widely known opinion on market research: […]
Webinar Preview: Patient-Reported Outcomes and Patient-Centered Outcomes: Is There a Difference?
By: Katie Soisson, Policy Associate There are many different types of health outcome measures that can be classified by the type of information collected or how the information was collected […]
Building Data Systems for the Science of Patient Engagement: A Recap of the NHC’s Chief Medical and Scientific Officer Conference
By: Elisabeth Oehrlein, PhD, MS, NHC Senior Director, Research and Programs Last week, chief medical and scientific officers from patient organizations and industry groups met in Washington, DC, for Sharing […]
2018 Chief Medical/Scientific Officers Conference
2018 Chief Medical/ Scientific Officers Conference Sharing Patient-Centered Outcomes Data: Building A Better Mousetrap Based on Learnings from the Research Community Patient Provided Information: How Best to Store, Integrate, Share, […]
Elevating and Improving Patient-Focused Drug Development
By Jason Harris, NHC Associate Director, Policy and Programs The driving force behind all of our work at the National Health Council (NHC) is meaningfully engaging patients in every aspect […]