By Susan Gaffney, Vice President, Membership, Development and Operations It’s apparent we are all going to spend days, weeks, and possibly even months isolating ourselves at home due to COVID-19. […]
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Member Spotlight: Mental Health America
By Katherine Scott, Senior Manager, Membership Services and Certifications Founded in 1909 by Clifford W. Beers, Mental Health America (MHA) is the nation’s leading community-based nonprofit dedicated to addressing the needs of those […]
Update: NHC to Host Introduction to Real-World Evidence & Real-World Data Trainings
By Silke Schoch, Manager, Research & Programs Background In 2017, the National Health Council (NHC) held a meeting, Patient Perspectives on Real-World Evidence: A Roundtable to Gather Views, Needs, and […]
Join Us in Raising Awareness for These Causes in April
Join Us in Raising Awareness for These Causes in April By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for […]
ICER’s Updated Value Framework
By Aimee Lee Russell, Associate, Research & Programs On Friday, March 20, Steve Pearson, MD, MSc, Founder and President of the Institute for Clinical and Economic Review (ICER), and Sarah […]
Webinar Summary: Coronavirus Preparedness for People with Chronic Diseases
Webinar Summary: Coronavirus Preparedness for People with Chronic Diseases By Theo Smith, Communications Intern On Friday, March 13, the National Health Council (NHC) held a webinar on coronavirus preparedness for […]
Member Spotlight: Alpha-1 Foundation
By Katherine Scott, Senior Manager, Membership Services and Certifications The Alpha-1 Foundation was founded in 1995 by John Walsh, Sandy Lindsey, and Susan Stanley, three people diagnosed with Alpha-1 Antitrypsin […]
COVID-19 and Mental Health
By Maddie Mason, Senior Associate, Policy The novel Coronavirus, also known as COVID-19, was categorized as a pandemic by the World Health Organization (WHO) on March 11, and two days […]
Observer-reported or Proxy-reported: Is One Better than the Other?
By Aimee Lee Russell, Programs Associate On February 24, the National Health Coucil held a webinar to discuss differences between caregiver-reported and proxy-reported outcomes, which are not are not the same. […]
Getting to Know: Jennifer Dexter, Policy Director
Getting to Know: Jennifer Dexter, Policy Director Following is a Q&A to get to know Jennifer Dexter, Policy Director, who began working at the National Health Council (NHC) in September […]