Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
What are Clinician-Reported Outcomes (ClinROs)?
09/20/2019COA Series: What are Clinician-Reported Outcomes (ClinROs)? This webinar featured John H. Powers III, MD, FACP, FIDSA [C], Professor of Clinical Medicine, George Washington University
Getting to Know: Katherine Scott, Senior Manager, Membership Services and Certifications
09/19/2019Getting to know: Katherine Scott, Senior Manager, Membership Services and Certifications Following is a Q&A to get to know Katherine Scott, Senior Manager, Membership Services
Back to School with the NHC: Patient Community Training on Value Assessment
09/17/2019By Aimee Lee Russell, Associate, Programs This training was funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (8620-NHC). On Friday,
Patient-Reported Outcomes in Orphan Drug Labels Approved by the US Food and Drug Administration
09/16/2019Dr. Eleanor Perfetto, NHC Executive Vice President, Strategic Initiatives, co-authored a paper titled, “Patient-Reported Outcomes in Orphan Drug Labels Approved by the US Food and
Member Spotlight: Servier U.S.
09/09/2019By Katherine Scott, Senior Manager, Membership Services and Certifications Servier Pharmaceuticals is a commercial-stage pharmaceutical company with current treatments for patients with acute lymphoblastic leukemia
Value Assessment Methods for Single or Short-Term Transformative Therapies (SSTs)
09/06/2019The National Health Council (NHC) is pleased to provide comments on the Institute for Clinical and Economic Review’s (ICER) solicitation for feedback on the, “Value
Patient Community Training on Value Assessment
09/06/2019On Friday, September 6, 2019, the National Health Council convened a training for patients and patient organizations to learn about value assessment. Read the Executive Summary here.
What to Expect from Congress in September
09/05/2019By Eric Gascho, Vice President, Policy and Government Affairs The House and Senate departed for their annual month-long recess in August and will both resume
Join Us in Raising Awareness for These Causes in September
09/04/2019By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give