Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Core Outcome Sets


Core Outcome Sets This webinar featured Donna Messner, PhD, President & CEO at the Center for Medical Technology Policy. Dr. Messner is President and CEO

Member Spotlight: Lupus Foundation of America


By Kelly Garrity, Senior Director, Membership Services and Development The Lupus Foundation of America works to improve the quality of life for all people affected

Introducing the NHC’s Rubric to Capture the Patient Voice


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The National Health Council Announces the Release of a Rubric to Capture the Patient Voice


By Silke Schoch, Senior Associate, Programs Over the past few decades a cultural shift has been occurring in the health care ecosystem. There is finally

NHC’s Support of a Cap on Out-of-Pocket Costs for Medicare Part D


Dear Chairman Grassley and Ranking Member Wyden: As the Senate Finance Committee is crafting legislation related to prescription drug and other health care costs, the

Update: Lowering Health Care Costs Act of 2019


The Senate Committee on Health, Education, Labor and Pensions (HELP) advanced bipartisan legislation to lower health care costs with a 20-3 vote on June 26,

NHC Standards of Excellence: Board and Governance Best Practices


In our last post we reviewed the ten minimum Standards of Excellence (Standards) that NHC voluntary health agencies (VHAs), also known as patient advocacy organizations,

Join Us in Raising Awareness for These Causes in July


By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give

What is the difference between health-related quality of life (HRQoL) and patient-reported outcomes?


What is the difference between health-related quality of life (HRQoL) and patient-reported outcomes? June 27, 2019 By Aimee Lee Russell, Associate, Programs On June 10,