Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
The NHC’s 10 Minimum Standards of Excellence
05/16/2019By Kim Williams, Senior Associate, Member Services and Certifications Membership in the National Health Council by voluntary health agencies (VHAs), which are also known as
Lessons Learned from a Patient Group’s Experience Developing a PRO
05/14/2019Lessons Learned from a Patient Group’s Experience Developing a PRO This webinar featured Dory Kranz, CEO of the National Alopecia Areata Foundation (NAAF) and National
Don’t Miss NHC Team Presentations at ISPOR 2019
05/13/2019The NHC team, led by Dr. Eleanor Perfetto, NHC Executive Vice President of Strategic Initiatives, and Dr. Elisabeth Oehrlein, NHC Senior Director of Research and Programs,
Measuring Patient Experiences: Distinguishing Between Patient-Reported Outcomes (PROs) and Patient Preferences
05/09/2019By Silke Schoch, Senior Associate, Programs On April 18, Dr. Pauline McNulty, Vice President of Patient-Reported Outcomes and Dr. Bennett Levitan, Senior Director of Benefit-risk
Infographic: NHC Policy Proposals for Reducing Health Care Costs
05/08/2019We recently updated our health care cost policy recommendations to better reflect the current health care environment and help guide Congress and the Trump administration
CMS Releases Final Marketplace Rule for 2020
05/06/2019By Madison Mason, Policy Associate, National Health Council The Centers for Medicare and Medicaid Services (CMS) recently published its final rule for the 2020 Notice
Join Us in Raising Awareness of these Causes in May
05/03/2019By: Hannah Barnett, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give
Member Spotlight: Charcot-Marie-Tooth Association
05/02/2019By: Kelly Garrity, Senior Director, Membership Services and Development The Charcot-Marie-Tooth Association (CMTA) is the leading patient advocacy organization supporting research to develop treatments for
Patient-Focused Medical Product Case Examples
05/02/2019Patient-Focused Medical Product Development Case Examples About Patient-Focused Medical Product Development Patient-focused medical product development is a mechanism by which stakeholders, including but not limited