Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Join Us in Raising Awareness for These Causes in August

08/01/2019

By Theo Smith, Communications Intern Patient advocacy organizations work tirelessly to educate, promote, advocate, and raise awareness and funding for their causes. Awareness months give

What Matters Most for Treatment Decisions in Hepatitis C: Effectiveness, Costs, and Altruism

07/30/2019

The following is an excerpt from a study co-authored by Eleanor M. Perfetto, PhD, MS, National Health Council’s Executive Vice President, Strategic Initiatives, published on

Getting to Know: Eric Gascho, Vice President, Policy and Government Affairs

07/29/2019

Getting to Know: Eric Gascho, Vice President, Policy and Government Affairs Following is a Q&A to get to know Eric Gascho, Vice President, Policy and

Medicare Advantage and Part D Rule: A win for patients, but out-of-pocket costs must be capped

07/26/2019

The following is an excerpt from an op-ed by National Health Council Chief Executive Officer Marc Boutin, published on July 25, 2019 in The Hill.

Patients need a health system that helps them make informed decisions

07/22/2019

The following is an excerpt from an op-ed by National Health Council Chief Executive Officer Marc Boutin and FasterCures Executive Director Tanisha Carino, published on

President Trump’s Executive Order on Pricing Transparency

07/22/2019

By Maddie Mason, Associate, Policy President Donald Trump delivered an executive order (EO) on June 24, 2019 titled “Improving Price and Quality Transparency in American

Development of the National Health Council Patient Experience Mapping Toolbox

07/18/2019

By Elisabeth Oehrlein, PhD, MS, Senior Director, Research and Programs The National Health Council (NHC) has kicked off an exciting new project to further our work

Core Outcome Sets

07/15/2019

Core Outcome Sets This webinar featured Donna Messner, PhD, President & CEO at the Center for Medical Technology Policy. Dr. Messner is President and CEO

Member Spotlight: Lupus Foundation of America

07/15/2019

By Kelly Garrity, Senior Director, Membership Services and Development The Lupus Foundation of America works to improve the quality of life for all people affected