Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Gwen Darien: ‘But You Seemed So Healthy,’ My Doctor Said. I Had Non-Hodgkin Lymphoma.

05/28/2019

The following is an excerpt from a US News and World Report blog by Gwen Darien, executive vice president for patient advocacy at the Patient

CMS Releases Final Rule on Medicare Advantage and Part D Drug Pricing Rule

05/23/2019

By Madison Mason, Policy Associate, National Health Council On May 16, 2019, The Centers for Medicare and Medicaid Services (CMS) finalized their Medicare Advantage and

ISPOR Panel with NHC’s Dr. Eleanor Perfetto Includes “Lively Discussion” on QALY

05/22/2019

The following is an excerpt from an article in the Journal of Clinical Pathways on a panel Dr. Eleanor Perfetto, Executive Vice President, Strategic Initiatives

What is the Patient Engagement Fair-Market Value Calculator?

05/20/2019

By Silke Schoch, Senior Programs Associate “Fair-market value” (FMV) calculators are tools traditionally used by industry to ensure the compensation rates they are using when

Methods Principles for Using Patient-Provided Information to Improve Real-World Evidence for Patient-Centered Value Assessment

05/17/2019

Methods Principles for Using Patient-Provided Information to Improve Real-World Evidence for Patient-Centered Value Assessment Study Objective To understand how patient-provided information (PPI) – gathered through

Final Medicare Part D Rule

05/16/2019

The following statement is from NHC’s Chief Executive Officer, Marc Boutin, JD: Today, CMS rolled back proposed changes to the Medicare Part D six protected

The NHC’s 10 Minimum Standards of Excellence

05/16/2019

By Kim Williams, Senior Associate, Member Services and Certifications Membership in the National Health Council by voluntary health agencies (VHAs), which are also known as

Lessons Learned from a Patient Group’s Experience Developing a PRO

05/14/2019

Lessons Learned from a Patient Group’s Experience Developing a PRO This webinar featured Dory Kranz, CEO of the National Alopecia Areata Foundation (NAAF) and National

Don’t Miss NHC Team Presentations at ISPOR 2019

05/13/2019

The NHC team, led by Dr. Eleanor Perfetto, NHC Executive Vice President of Strategic Initiatives, and Dr. Elisabeth Oehrlein, NHC Senior Director of Research and Programs,