The National Health Council (NHC) is pleased to provide comments on the Food and Drug Administration’s (FDA) discussion documents related to Guidance 4: “Incorporating Clinical Outcome Assessments into Endpoints for […]
Patient Engagement
The NHC’s Clinical Outcome Assessment Webinar Series is Now the Patient-Focused Medical Product Development Webinar Series
By Silke Schoch, Manager, Research & Programs In November 2018, the National Health Council (NHC) launched a monthly webinar series to educate our members about clinical outcome assessments (COAs), such […]
February Medical Innovation Action Team
Contact Maddie Mason, Senior Associate, Policy, for more information.
Patient-Focused Medical Product Development Webinar Series: A Look at Rare Disease Listening Sessions with NORD and the FDA
Patient-Focused Medical Product Development Webinar Series: A Look at Rare Disease Listening Sessions with NORD and the FDA Event Date: January 31, 2020 Event Time: 1:00 pm Event Location: Webex […]
Patient-Focused Medical Product Development Webinar Series
Patient-Focused Medical Product Development Webinar Series The NHC’s Patient-Focused Medical Product Development series builds upon our Clinical Outcome Assessment (COA) series, which we hosted between Nov. 2018-Dec. 2019. The series […]
NHC Seeks Public Comment on Two Fair-Market-Value Compensation for Patient Engagement Tools
By Silke Schoch, Manager, Research & Programs As part of the National Health Council (NHC) Fair-Market Value (FMV) project aimed at supporting sustainable agreements between stakeholders and the patient and […]
2019 Science of Patient Engagement Symposium
2019 Science of Patient Engagement Symposium Using Data Science, Technology, and Patient Engagement to Personalize Health Care Event Location: Washington, DC The annual National Health Council (NHC) Science of Patient […]
Call for Comments: Patient-Centered Value Model Rubric and Get-Ready Checklist for Patient Organizations
Due: February 3, 2020 In 2016, the National Health Council (NHC) released two tools to help the patient community prepare for value assessment: the Patient-Centered Value Model Rubric and Get-Ready […]
A Dialogue on Patient-Centered Value Assessment: Overcoming Barriers to Amplify the Patient Voice
A Dialogue on Patient-Centered Value Assessment: Overcoming Barriers to Amplify the Patient Voice Read the full paper. On July 31, 2018, the National Health Council (NHC) convened representatives from US […]
Tools to Support Sponsor-Patient Engagement: Fair-Market-Value Calculator and Engagement Templates
Sponsor-Patient Engagement Toolbox Eleanor Perfetto, PhD, MS, Executive Vice President of Strategic Initiatives, and Silke Schoch, Manager, Research & Programs, will present the NHC’s Patient Engagement Fair Market Value (FMV) […]