The National Health Council encourages patients and patient advocates to be engaged in research, policy, medical-product development, quality-of-care, and value-of-treatment initiatives. We have developed the NHC Center of Educational Excellence, an e-learning resource, to help patients and patient advocates understand complex topics related to patient centricity in health care. Here you will find our webinar series on value and payment models as well as educational curriculums on quality measures and value assessments.
The National Organization for Rare Disorders (NORD) recognized that to improve rare-disease patient engagement, training and support are needed. The NHC partnered with NORD and the University of Maryland to provide training on patient-centered outcomes research (PCOR) for the NORD membership. Learn more here.