COVID-19: Information and Resources You Can Use
COVID-19, which began as a pandemic in 2020, continues to impact those with chronic conditions and their family caregivers. Though it is no longer designated a global pandemic by the World Health Organization and the U.S. government ended its public health emergency in May 2023, COVID-19 is still circulating and can cause severe illness for certain high-risk groups. People with chronic conditions are encouraged to know their risk and discuss a plan for handling a COVID-19 infection. The following are resources that patients and patient advocates can use to manage and communicate about COVID-19.
Trusted Messenger Video Project
Check out this a new digital video series that features discussions with prominent health care experts and advocates about the importance of measuring and reducing personal risk associated with COVID-19.
Understanding COVID-19 Vaccine Technology and Vaccine Hesitancy Among Patients with Chronic Diseases
Vaccination is considered one of the 10 greatest public health achievements of the 20th century, improving quality of life and decreasing severity of disease. The unprecedented COVID-19 pandemic precipitated international collaboration to produce vaccines on a global scale. However, challenges have arisen in ensuring lasting immunity for high-risk individuals, people with weakened immune systems and patients with chronic diseases. In addition, the disruption of the health care system widened existing health inequities and public health information was produced too quickly for communities to remain abreast of the research. The intent of this brief is to clarify the complexity of the vaccines and combat the spread of misinformation and vaccine hesitancy.
Webinars
Nutrition-Related Quality Measures: How Might They Improve Care for People with Chronic Conditions?
04/09/2021 12:00 pm, Virtual, Zoom Read MoreOther NHC Resources
Vaccine Resources
- LUNGevity Foundation’s COVID-19 Vaccine FAQs: English & Spanish Versions
- Reagan Udall Foundation- COVID-19 Vaccine Confidence Project
- de Beaumont Foundation Poll on Vaccine Acceptance
- Pfizer COVID-19 Vaccine Equity Toolkit, and PSA campaign videos “Goodbyes“, “Playdate,” “Baby Announcement,” and “Hug”
- National MS Society- Vaccine Guidance
- National Psoriasis Foundation- Task Force Vaccine Statement
- Alpha-1 Foundation- COVID-19 Updates
- BIO- COVID Vaccine Facts
- The American Association of Colleges of Pharmacy’s COVID-19 resources
- Alliance for Aging Research COVID-19 Vaccine Education and Equity Project
- American Association on Health and Disability (AAHD) Vaccine Hesitancy Survey and Analysis
Other Resources from NHC Members
- American Cancer Society: Common Questions About Coronavirus
- American Cancer Society – Cancer Action Network: COVID-19 Pandemic Impact on Cancer Patients and Survivors
- American Foundation for Suicide Prevention: Mental Health & COVID-19
- American Heart Association: What Heart Patients Should Know About Coronavirus
- American Lung Association: Coronavirus Resources
- American Nurses Association: COVID-19 Resource Center
- Alliance for Aging Research: COVID-19 Information
- Arthritis Foundation: Coronavirus & Arthritis – What You Need to Know
- Asthma and Allergy Foundation of America: What People with Asthma Need to Know
- Barth Syndrome Foundation: COVID-19 Online Support Groups
- Beyond Celiac: Coronavirus & Celiac Disease
- BIO: Return to Office Planning
- COPD Foundation: Coronavirus Information for the COPD Community
- Food and Drug Law Institute: FDA’s Recent COVID-19 Guidances
- Gilead: COVID-19 Community Outreach Webinar Series
- Hydrocephalus Association: Guidance for People Living with Hydrocephalus
- Lupus Foundation of America: Coronavirus & Lupus
- The Mytositis Association: How to Cope with Fear & Anxiety During COVID-19
- National Alliance of Healthcare Purchaser Coalitions: COVID-19 Employer Resources
- National Eczema Association: Living with Eczema During the COVID-19 Crisis
- National Kidney Foundation (NKF): Kidney Patient Prep During COVID-19, Transitioning a Live Annual Conference into a Virtual Meeting During a Pandemic: Lessons Learned, NKF Virtual Spring Clinical Meetings
- National MS Society: COVID-19 Resource Center
National Psoriasis Foundation COVID-19 Resources
- Osteogenesis Imperfecta Foundation: Community Resources
- Pfizer COVID-19 Infographics: Cardiomyopathy, Chronic Kidney Disease, General High Risk Patient, Immunocompromised Patient, Obesity Patient, Pregnancy Patient, Pulmonary Embolism Patient, Sickle Cell Patient, Smoking Patient, Stroke Patient
- Prevent Blindness: COVID-19 Eye & Vision News
Sjögren’s Foundation: Coronavirus Updates
- The Spondylitis Association of America: COVID-19 Research News
- Solve M.E.: COVID-19 Information Center, You + ME Registry and Biobank
- WomenHeart: COVID-19 & Heart Disease
- Long COVID Alliance
Government and Other Resources
- AMGA: COVID -19 Resources
- Association of Aging in New York & BellAge: CV19 CheckUp
- BioCentury: COVID-19 Resource Center
- Brain Injury Association of America: COVID-19 Resources
- Centers for Disease Control and Prevention (CDC): Protect Yourself, Protect Your Home, Morbidity & Mortality Report
- Center for Workplace Mental Health: Working Remotely During COVID-19
- Citizen Science: COVID-19 Study
- Department of Labor: COVID-19 & the American Workplace
- Fisher Phillips: Comprehensive FAQs for Employers, Legal Alerts on COVID-19 – Including State by State Information
- The Hastings Center: Ethical Framework & Guidelines for Health Care Institutions Responding to the Coronavirus Pandemic
- Johns Hopkins University: Coronavirus COVID-19 Tracking Map
- Medical Device Innovation Consortium: Patient Resources During COVID
- The Maryland Poison Center: What You Should Know About Chloroquine and Hydroxychloroquine
- National Institutes of Health: COVID-19 Resources
- Office of Civil Rights: Civil Rights Laws and HIPPA Flexibilities that Apply During the COVID-19 Emergency
- Synapse: Patient Focused Medicines Development Coronavirus Hub
- Trellis Partners: Operational Conditions for Going Back to the Office
- World Health Organization: COVID-19 Pandemic Information
Caregiver Resources
- AARP: Resources on COVID-19
- Alliance for Aging Research: Common Questions & Answers About COVID-19
- Alzheimer’s Association: Coronavirus (COVID-19)- Tips for Dementia Caregivers
- American Cancer Society: Information for Cancer Caregivers
- ARCH National Respite Coalition: Caregiving and Respite in the Time of COVID-19
- Caregiver Action Network: Caregiver Help Desk, or call 855-227-3640, 8:00 a.m. – 7:00 p.m. ET
- Elizabeth Dole Foundation: COVID-19 Hidden Heroes Resource Hub
- Family Caregiver Alliance: COVID-19 Resources and Articles for Family Caregivers
- The John A. Hartford Foundation: Coronavirus Disease Resources for Older Adults, Family Caregivers, and Health Care Providers
- Mental Health America: COVID-19 Information
- National Alliance for Caregiving: Caring Across Generations, Tips for Sandwich Generation Caregivers in the Era of COVID-19
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