Advancing the Development of Patient-Centered Core Impact Sets (PC-CIS) Blueprint

The National Health Council (NHC) aspires to ensure patient centricity in our health care ecosystem by Advancing the Development of Patient-Centered Core Impact Sets. A PC-CIS is a recognized set of standardized impacts from a disease and/or its treatment that patients report as important to them. The term “impacts” includes health outcomes, such as what would be found in a core outcome set, and any other patient experience information (e.g., financial- or caregiver-related burdens) patients might report as important.  

As a result of this initiative, the NHC will produce a publicly available Blueprint, which will:   

  • Outline the intent and purposes of PC-CIS;  
  • Offer best practices for development and use of PC-CIS;  
  • Describe needed and existing tools to support development of PC-CIS; and  
  • Socialize the idea of collaborative development of PC-CIS   

A consensus-based, common Blueprint will establish standardized approaches and methods for developing PC-CIS, highlight good practices and potential applications, and identify needed or existing support tools. 

Project Kickoff Announcement

Read more on our blog.


The NHC has received Phase One funding to begin the PC-CIS initiative from two PC-CIS Initiative founding partners, the Innovation and Value Initiative (IVI) and the EveryLife Foundation for Rare Diseases.