Wide Range of resources on complex issues

We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.

Potential Aid for Patient and Community-Based Organizations Impacted by Coronavirus

Dear Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer: The 216 undersigned organizations write regarding prospective federal intervention to support the airline, travel, and other

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Domains of Patient Centeredness in Value Assessment

Domains of Patient Centeredness in Value Assessment What are the key characteristics of patient-centered value assessment? Download

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NHC Considerations Guide for Patient Organizations

The National Health Council’s (NHC’s) Considerations Guide for Patient Organizations Developing Comments on a Value Assessment is intended to be used as a tool by

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Enhancing the Patient-Centricity of Value Assessment: Pearls of Wisdom from Other Members of the Patient Community

Enhancing the Patient-Centricity of Value Assessment: Pearls of Wisdom from Members of the Patient Community A list of recommendations developed by members of the patient

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Glossary of Value Assessment Terms

Click here for an infographic on value terminology. Below is a list of plain language definitions of terms used in value assessment. Base case analysis:

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Observer-reported or Proxy-reported: Is One Better than the Other?

By Aimee Lee Russell, Programs Associate On February 24, the National Health Coucil held a webinar to discuss differences between caregiver-reported and proxy-reported outcomes, which are

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Getting to Know: Jennifer Dexter, Policy Director

Getting to Know: Jennifer Dexter, Policy Director Following is a Q&A to get to know Jennifer Dexter, Policy Director, who began working at the National

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Coronavirus Preparedness for People with Chronic Diseases

Coronavirus Preparedness for People with Chronic Diseases Event Time: 12:00 – 1:00 p.m. ET Event Location: Webex COVID-19 is causing significant concerns globally. During this

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National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov Modernization

The National Health Council (NHC) appreciates the opportunity to comment on the National Library of Medicine’s (NLM) Request for Information on ClinicalTrials.gov modernization. Clinical trials

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