Wide Range of resources on complex issues
We offer a wide range of resources on complex issues that impact all people with chronic conditions. Resources include member-specific services, frequent meetings and events, publications, and comments on rules and legislation.
A.I. Affinity Group Meeting
05/13/2024A.I. Affinity Group Meeting Event Time: 11:00 a.m. ET – 12:30 p.m. ET Event Location: Virtual Home Register Schedule Join the NHC’s inclusive conversation to
The Older Americans Act
05/13/2024The Older Americans Act By: Allen Pinn, Policy Coordinator This May marks the 61st Older Americans Month, a month-long observance introduced during the Kennedy Administration
Guest Blog: May 10 is World Lupus Day!
05/10/2024Guest Blog: May 10 is World Lupus Day! By: The Lupus Foundation of America May is Lupus Awareness Month, a time to bring attention to
Leading Experts Examine Patient-Centered Health Care Across the Lifespan at National Health Council Science of Patient Engagement Symposium
05/08/2024For Immediate ReleaseMay 8, 2024 Contact: Jennifer SchlemanJSchleman@nhcouncil.org Leading Experts Examine Patient-Centered Health Care Across the Lifespan at National Health Council Science of Patient Engagement
Get to Know: Spencer Morrissey, Coordinator, Executive Office
05/07/2024Get to Know: Spencer Morrissey, Coordinator, Executive Office Tell us something about you that no one would know from reading your resume. I’m a proud
2024 Washington Representatives Retreat
05/07/2024The Washington Representatives Retreat is an annual National Health Council (NHC) event where patient organizations and partners of patient organizations have an opportunity to discuss policy developments, hear from prominent speakers, provide input in the developing of the NHC’s legislative priorities, and network with public policy and government relations professionals from patient advocacy groups and nonprofit organizations.
NHC Spring International Patient Forum
05/07/2024The National Health Council (NHC) recognizes the international nature of health care advocacy, even for patient groups that operate primarily in the United States. The NHC International Patient Forum: How the U.S. Patient Community Can Be Informed, Involved, and Influential in International Dialogues and Discussions, offers NHC patient group and nonprofit members the opportunity to share information and strategic thinking on international patient issues. The meeting is designed to set the stage for a broader discussion and prioritize international issues important to the patient community and determine next steps.
Guest Blog: May 7th (5/7) and the 57kb Deletion for Cystinosis Awareness Day
05/02/2024Guest Blog: May 7th (5/7) and the 57kb Deletion for Cystinosis Awareness Day By: Heather Fields Rothrock, Member, Board of Directors, Cystinosis Research Network Introduced
NHC Comments on Key Information and Facilitating Understanding in Informed Consent
04/30/2024NHC Comments on Key Information and Facilitating Understanding in Informed Consent (PDF) April 30, 2024 Division of Dockets Management Food and Drug Administration 5630 Fishers